Same old!

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Everyone must be bored silly hearing me go on about this but I've had another few weeks of constant diahorrea followed by constipation! I take Immodium to stop and Senna to start! It would be funny if it wasn't ruining my life! My stoma nurse adviced taking 1 Senna every night, which I did on Saturday! Sunday only a very little output but Monday, OMG!! One gurggle and that was it, bag nearly bursting off my body and it just wouldn't stop! Sorry to be so graphic but it was horrendous! This time I haven't taken Immodium and it did stop after an hour or so! This morning I phoned the Stoma Clinic and I've been told to go back to bland foods! I haven't a clue how to make something interesting out of mashed potatoes, chicken and white rice, no veg ! Oh, forgotten bananas and smooth peanut butter! I hate sounding so sorry for myself, apologies everyone! It wouldn't be so bad if I knew WHY this is happening after 16 months but no-one seems to know! 

Apologies again,

Moira x

  • Hi Catgirl,

    Thanks for your email. My husband  had his original operation last October. He was only out of hospital for 2 weeks, and it was obvious his stoma would not work until he was sick. He went back in and had another operation for adhesions in January. I'm pretty sure he has had two blockages which cleared themselves, and the last one cleared itself while he was in hospital this time. He only went in because he didn't want to eat or drink, and I wanted to find out what was going on!!!  If the consultant operates again there is no guarantee he will be any better, and at 76 does he want another operation? The other option (apparently) is to be fed by tube overnight for life. Depending on what the bowel does that may change slightly. 

    We are both so fed up with him being sick, not feeling too great, tummy  distending, back in hospital etc. He seems to have lost so many days since October that I am wondering if what I classed as age, sitting around, little interest is really the bowel. He seems so much better on the drip in hospital, brighter, more cheerful. Or is that because there is plenty going on???

     . 

  • Hi Ann,

    I've already got my husband to download all of the places toilets are located in London, as well as in pubs of course! My sons, who are joining us, think I'm nuts of course but they won't be saying that if their.mother is emptying her pouch behind a bush, while they are keeping look out! Seriously though, just talking about it has helped, I think we have lost visibility as we've got older, at least we can have a giggle at the younger ones doing the same daft things we used to do! I find my pet gripe is mobile phones too, they've taken over the world!

    I've decided my sweet little Brooke is going to have to just learn to live with me, consideration should be given to her but also to me! I was going to cancel London but I'm going to have FUN! Can't see us getting to America this year but fingers crossed for next year!

    Best Wishes,

    Moira x

  • Hi Kath,

    I'm finding it's easier to use drainable pouches most of the time lately, my stoma just works so rapidly, with no warning! I'd had no output for 3 days last night and was just about to go to bed at 12-50am, when it decided to get very active!

    How about strong, large freezer bags, I wonder if they would work if I was caught without a loo? And you and Artsie are both so right, we're the invisible army these days!

    Thanks for cheering me up,

    Best Wishes,

    Moira c

  • Moira that’s brilliant. Once you do it there will be no stopping you. I’m really pleased that you’re going for it. I was  given a key and card to use toilets disabled or locked. I’ve never used it but it’s in my bag. 
    Wear clothes you are confident in and tell Brooke you’ve got her covered SmileySmileySmiley

    Ann
     ‍Art

  • Hi yes  Ive used bags.especially the black ones from my stoma products supplier .nice handles to tie like doggy bags.just dont hang it in a tree like those weird dog owners do.I never have understood that.JoyJoyJoyJoy

    Kath

    Ps.someone advised me that if I was worried,to carry a light cardigan or similar to tie around my waist to cover a bulging bag.I have noticed that tracy emin does it.

  • Hi Everyone,

    Now that I've made my mind up that I'm having my London holiday, no matter if Brooke likes it or not, is there such a thing as an extra large stoma pouch? What I've just passed, no human being should have inside of them! All I ate yesterday was a cheese omelette and a slice of toast, a few jelly babies and marshmallows, and another slice of toast with banana! What the heck is wrong with that? Oh, and a chunky KitKat, maybe it's that! 

    Best Wishes,

    Moira x

  • Haha! I have had a volume in my bag and clothes that an elephant would be proud of! It’s sometimes astonishing what is in there and you wonder how it can be possible. I hope you enjoy your holiday-I love mine!

    Sarah xx


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  • Thanks Sarah, for the laugh and the reassurance! I look as if I'm carrying full term twins at times, one way of a 72year old getting famous!

    Best Wishes, 

    Moira xx

  • Yep-I have two stomas so I recognise this completely! Sometimes don’t know which one to deal with first, but usually my colostomy as that does the most damage! Joy

    Sarah xx


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  • Ha ha Moira 

    Definitely not a Kit Kat it’s made of biscuits which is really good for binding. They’re like crackers or crisps they thicken. The chocolate is coco bean and milk so again healthy 

    marshmallows and jelly babies they probably had a party with the biscuit. Ha ha. 
    This is so funny 

    If anyone had said to me a year ago I’d be imagining sweets dancing Dancer tone1 In a disco bag I’d think they’re mad.
    But it’s really made me smile.
    Thank you all. I’ve had a rotten time lately and you’ve bought me back to my wicked sense of humour 

    You enjoy London Moira you deserve it and remember gag Brooke it’s your time

    Sarah enjoy prepping for Zante

    Ann
     ‍Art