Surviving Oesophageal Cancer

Hi Ben, I hope you’ve been well these last few days and managing to control the pain to enable you and Sharon to enjoy days out and for you to get a good night’s sleep.  I know you have a CT scan coming up today I think, so I’m wishing you well on this and I think you see your consultant next week don’t you?  I’m waiting to see a few photos from your party so I hope that you can post some soon.  Love to you and Sharon. xx

Hi Steve, I read on a post that you’d not been feeling too well recently, so I really hope it’s just one of those unpleasant occasional episodes that we sometimes get.  Let’s hope that by the time you read this you’ll be feeling fit again. Take good care. xx

Hi Leisha, I’m so sorry that Ed has been so poorly and that the doctors are now looking at long term palliative care.  As you say, Ed’s fought this once and is such a fighter, so I feel that he’ll be at his son’s wedding next August.  Try to stay strong, Ed will hopefully be home soon where, with your care, he’ll begin to recover quickly.  I send you big hugs (((((((Leisha)))))) and you’re never far from my thoughts. xx

Hi Wendy, I know you like to look in so I hope all is going to plan and that you’ll begin to feel good again very soon.  Take care. xx

To All, have as good a day as you can.  Love Crystal xx

Crystal - just to say thinking of you xxx Carol

hi crystal,

how have you been? its been a while i hope you are well, its taken me a while to work this new site

hope all is well with every one or as good as it can be

take care

li 

Hello everyone, sorry nott been on for a while as there was some mixup over my internet access but son sorted it so here i am.

Dont know how you all are but hope you can update me. Ed home again but fighting small bowel cancer as well as pancreas now. Still he is happy to be in own bed and able to eat a little.

love to you all, look forward to hearing from you, love leisha xxxx

Hello

Can you tell me what is the name of the blood test. To check the cancer markers in your blood? Thanks for your replys in advance

Maggie

Hi Bill, not heard from you for a while. I wanted to wish you all the best for the appointment with the radiologist but now Im not sure, with the time difference, if Im a bit late! i still hope you have good news and hope you let us know how you got on.

This thread been a bit quiet lately but I guess everyones thoughts have been with Crystal as she stayed with her mum at the hospice. It is so sad to loose a loved one no matter what age and all out love goes to Crystal and her family at this sad time.

love leisha, xx 

Hi Maggie

You don't say what cancer you suspect, however there are many raised markers that can indicate certain types of cancer. A raise marker is not an instant diagnosis of cancer but an indicator, just as some markers are not raised when the patient has that particular cancer. A good site to look at is http://www.labtestsonline.org.uk/  this site gives some good information about various tests used. I dont think there is a definative test for our condition other than outward signs. i.e weight loss, eating problems; endoscopes and body scans etc are the tools of choice when diagnosing any further spread.

Hope this helps,

Take care

Steve

Hi Leisha

I hope things are ok with you and that EDs condition is still improving and he is pain free.

Hi Ben

We have not heard from you for a while, I certainly hope you are ok and still able to enjoy your wonderful weather down under.

To everyone else looking in try to have a good evening,

All my very best,

Steve

Hi everyone,

Sorry I have been out of touch - I am still coming to terms with the new site and am never sure where some of the notes are coming from so will simply answer everyone on this thread.

Liesha and Steve thanks for your concern, Crystal - my heart goes out to you with the loss of your Mum.

We have had quite a few more adventures with the latest being first session on fri16th  with radioligist  and seems like the pain is due to a pathological fracture of my left humerus(not funny!!). Booked in 9am Mon for target CT scan before probably bout/s of radiation. On Tues have a gastrocophy as feels like throat needs another ream out.

Certainly explains the pain which is a constant balancing act. Has its humorous side when it catches me unexpectedly --  it's like someone with touretts syndrome as I let out an involuntary youch!!! or similar. Have what I call the shouty wakes when I wake in the small hours to the sound of someone shouting out really loud only to realise it's ME!!! The drugs play a large part in this and I'm looking forward to some treatment to ease this.

Apart from that we are in good spirits - weight still down at 58kg but appetite back and the sun rises beautifully every morning (well almost every morning)

All the best to you all and take care.

Cheers Ben and Sharon.  

Hi Ben, so good to hear from you and that you still have that great sense of humour. I relised how important that is when it returned to me recently. Ed has had bad news in that the cancer has spread to pancreas and now small bowel. He had a bowel bypass which means no bag and he can eat a bit better but I got really down with hospital rules on visiting to be overturned! and rows on the carpark, lol. Then one morning I could smile again so i guess I am ready to battle on. Ed is stubborn and was sunbathing ( october/ england,) in his russian hat and overcoat the other day, what a sight, !!!!!!!!!

I feel sorry for Sharon with this shouting and twitching from yourself, but i guess she has a sense of humour or you would never have chosen each other, take care of yourselves and good luck with the pain control. We are hoping to see a picture of you napping next to your great grandson ?????????

love leisha, (((((((((((((((((hugs))))))))))))))))))