Surviving Oesophageal Cancer

Hi Ben, I’m so sorry that you’re having such severe pain with that shoulder and I sincerely hope that the radiotherapy will relieve it so you can get a decent night’s sleep.  As usual, your stoical nature and sense of humour shine through and I know this approach will get you through this latest adventure.  I laughed when you said you sound like someone with tourettes syndrome, as I can imagine the expletives a young sea dog like you might come out with.  Anyway Ben, I hope that you don’t have too many escapades like this.  Stay strong, know that I’ll be thinking of you, and as long as you have Sharon there beside you, all will be well.  We’re always here to support you so let us know how you get on.  Thanks for your sentiments regarding my mum, it will be her funeral tomorrow, but I particularly wanted to let you know that I haven’t forgotten you.  Take good care.

Love Crystal xx 

Hi to All, thank you so much for all your continued support, I really appreciate it. I’ll be back soon, so until then I send you all healing thoughts, hugs and love.  Leisha, I’m thinking about you especially and send you warm hugs. xx

Hope everything goes well today for you and your family and im thinking of you xx

Hi Crystal Leisha and Steve,

Had planning CT scan yesterday and we had a good laugh when the nurse asked if it would be ok to make  a few marker tattoos on my chest and arm. We   collapsed laughing !!! (I have a large dragon tatooed on my chest from my navy days - they got him between the eyes) and they also shared the joke. So have everything lined up for 10 radiation treatments in the next few weeks. So thats good news.

Today had gastroscopy and they knocked me out in case a "ream out" was necessary  - pleased to say it wasnt - every thing is clear  --  great news. Good job I was out to  it - Sharon said she could hear me shouting out in the waiting room which scared the hell out of the natives - problem was they tried to turn me over on the side where the fracture is - and I was blisfully unaware of all the fuss!!

But all looks good , now just have to get the radiation started so I can stop taking all these pills.So thanks again for all your thought s and good wishes - trust all is well with all of you.

Cheers Ben and Sharon.

Hi Ben and Sharon, I cant take the smile off my face, right between the eyes!!!!!! i would like to have ben there, lol. Good news then, now you can get on with it.

Ed met his macmillan nurse yesterday and she is going to find out what to do about his low blood count and arrange chemo appointment so moving on a little. Ed went in car for first time since coming home and got his hair cut so looks a bit more like himself, scruffy git he was turning into. Got to keep up an image eh. Thought we might dye it back to original, after all if we dont like it it will probably fall out during chemo, I always loved Yul Briner ( King and I film for any young ones looking in1)

Well take care of each other, love leisha xx

Ben

That’s the sprit; you can shout whatever you like except abandon ship. I am pleased to know treatment is now firmly underway which should help with your pain. Give my very best to Sharon and also that your dragon has got over the indignity of having a third eye.

Leisha

I hope you and Ed are ok today; it is good to know everyday things are starting to return to normal. I hope Ed can get some positive news over his blood count so he can start his treatment, best keep him warm because he really does not need a cold right now.

Crystal

I trust Monday went as well as it could and that you are finding some me time to reflect on the good times you and your mum had.

A good day to everyone else who may be looking in,

Steve

Hi Ben, how are you and Sharron? Hope the treatment isnt too harrowing. Let us all know how its going when you can. We are having spring like weather here, fantastic. Trying to make the most of it while we can. Bet yours is better though.

Hi steve, hope you are well and enjoying an indian summer too

Hi Crystal, you are never far from my thoughts so take care of yourself and look forward to hearing from you

Ed has app with oncologist this fri at 6pm. He really isnt well this week but it is only 4 weeks from op and GP says bloods are rising slowly so that is good.

Love to all Leisha xxxxxxxxxx

Hi everyone

Havent been posting for a while coz it just depresses me sometimes.  Roys had a bit of a rough time recently and was admitted back to hospital today with breathing difficulties.  Its so frustrating wanting answers straight away.  Im hoping its nothing too bad but we probably wont know anymore until tomorrow.  Its just the waiting and its always there in my mind but im trying to be positive for the girls- i think they are both blocking it out because they dont want to believe it-  but thats maybe the way they cope as teenagers.

I hope everyone else is ok and at least the sun shone todayxx

Hi, hope you get some good news for Roy, it must be so hard with the girls to worry about too and we all know how bad the damn waiting is. take care of yourself as everyone relies on mum dont they. I hope you have family to support you and i will be thinking of you today, leisha (((((((((((((((((((((((((((hug)))))))))))))))))))))))))

Thanks for your kind words Leisha.  They did an xray which showed up fluid on the lungs . He has a temperature and his heart rate shot up but has now stabilised.  His breathing was very bad but has improved as he was gasping for air when he first got to hospital.  They are treating it as pheumonia again so hopefully he will start to improve over the next few days.

Hope everyone is doing ok xx

Hi gg, any news? Hope you are both ok, and the girls. This is such a hard time for you I send you hugs ((((((((((((((((((((((((((hugs)))))))))))))))))))))))))))))) and i hope there is good news to come, xx

Hi Ben, not heard from you lately, too busy sunbathing no doubt! Not much chance of that here. indian summer over and wind, cold and rain with a vengeance. Hope you are doing ok.

Hi steve, hope you had a good weekend in spite of the weather! How are the energy levels. Dont work too hard.

hi crystal, thinking of you and hope you have had some "me" time to replenish your energy.

We are ok. Ed saw oncologist and should start chemo in about a month. having some checks on kidneys and heart first. Then 6x 3weeks treatment with 3 drugs, dont know names yet but one through drip, one by injection and the other tablets. Means only 1 day every 3 weeks at hospital which is better than we expected. Cant wait to start and see how it goes, fingers crossed.

Take care , love leisha xxxxxxx