Andrew, who began this thread, sadly died in September 2008, but his friends wished that his thread remain open in his memory, particularly to promote Andrew's idea of 'dancing away cancer' each Friday at 3pm. Please feel free to post your dance tunes every Friday in his memory.
Macmillan admin
Hello everyone,
this is my topic to start and its a question that has been burning around the back of my mind for the last few days.
I always thought that having a small group of very close friends was enough for anyone, ok you always have work colleagues and other acquaintances but the main group of my friends has remained within a steady little group of five people for nigh on the last twenty years. We have shared almost, if not all, of what life can show you over that period and nothing has every served to tear us very far apart for long.
There have always times when partners/other friends/own family have been more important to us and always been times when we are more important to each other and perhaps have taken some of this for granted and assumed that it will always be thus. I have reached the opinion that I have for certain.
Then you get cancer! Things change I suppose but I have cancer and all of a sudden things are important to me that weren't before and they have an impact on others which were not anticipated.
First I need to say that my friends have been great through this initial part of my illness and there is nothing to say that this position is going to change immediately - rather its me that seems to be changing and not them. I am having doubts about my ability to cope with what is happening to me and what may happen in the immediate future, I am doubting my friends willingness to hear what I have to say when they ask that questions each day "How are you?", I don't want to say "OK thanks" each time when I am not OK,
I want to say "it bloody hurts" and "I don't feel well at all" and "I think its really unfair that I have this disease and you don't" (that one really stings in your head and even if its not at all true, sometimes you can't help yourself thinking it even fleetingly).
Then after that I get guilty about having the disease and having those bad thoughts that seem to go along with it all. I keep thinking that I am asking too much of them now in terms of emotional and physical help and what if their well runs dry later when I need them even more than I do now and they have nothing left to give me. Then I think that that is a really selfish "me, me me" attitude to have and that gets me really down - can you be guilty about a guilty thought which in itself is only a selfish thought about feeling guilty - just how big a knot is that one to unravel.
Anyway before I drive all away completely with this "hymn to the depressed" that brings around the original thought I had;
- can you use up and wear out your friends and family with this thing before you need them most?
Thanks for reading (if you managed to get through the dirge without laughing too much) and any thoughts are appreciated.
Cheers
Andrew
Good morning to everyone.
I am really sorry about the last couple of days and my absence from the thread but I do have good reasons (honest).
For some reason, drugs or pain or whatever, I was suffering from some sort of psychotic episode over about 24 hours and, indeed even after speaking to Moomy on the phone, this carried on until the early hours of this morning. I do seem to be over it now and my thoughts are clear. The little men chasing me around the home are completely gone!
I don’t know quite how to describe what went on but here goes_;
I was convinced that the doctors in my flat had a cure for cancer, this involved explosive enemas which had to be inserted 20 at a time. They were cone shaped with barbs down the side so they could only go one way! They were done in twenties because that was the required dosage and nothing less would do. After insertion each one would explode in tern and the dancer cells would be destroyed internally and just fall out. Seemed like a good idea to me - lol.
Unfortunately this didn’t happen and they put them in the wrong place and pushed them up against my spine, the result of this was excruciating pain up my spine and down my legs. The, imaginary, doctors had gone by now except for one, he refused to do anything and said that I Had to run the whole course of 20 explosions before anything could be done and so I just had to live with it.
By now a crowd of onlookers had descended on my flat and I was holding conversations with them but I cannot recall any of these in detail other than the fact that they were very unhelpful and rather horrible to me personally (perhaps Freud would have a field day here - lol ).
I could not move initially and only felt severe pain in my back and legs which was making me cry out loud in pain - I do not know whether or not these cries were in my imagination or whether they were out loud in reality!
At some point during this time I got up from the sofa, either really or in my dream, and wandered about the house screaming every time I moved. Again I don’t know whether this was real or not but it felt real to me at the time.
Then the imaginary docs came back and wanted to try again with the remaining 20 enemas which of course sent me in a kind of panic mode which had me rushing about the house trying not to let these people hurt me any further. You can imagine what that did to me and to the levels of pain I was feeling.
I did not let them and then must have gone to sleep, imaginary or otherwise, and woke up about 5am yesterday morning on my sofa and in pain. I had no idea what time or day it was by now having though that I’d just dozed off for a few minutes! I must have then gone back to sleep because the next thing I know is waking up in the late afternoon with the phone ringing.
Moomy called me to see what was going on (so she has heard this tale already) to which I had to ask simple things like what day and time it was. So big thanks to Helen for calling.
I didn’t go on the site again yesterday as I, apparently, wasn’t finished with this episode. I managed to stay awake and compis mentis long enough to get through the evening and went to about 10pm - after having explained my lack of contact to my friends - or so I thought!
The Doc returned with the remaining enemas but this time I refused point blank and actually managed to get away from him. I did then really wake up at about 2am this morning and did really go to bed this time. Woke up at about 6.30am and as no longer tired after all that sleep I got up and decided to write down what has happened.
I am completely over it now but am trying to consider what happened and why. Various people I have discussed this with feel it may be the change in medication I have been through. The addition or the Amyltriptelene and Diazepam (for some reason I took 3 at once - maybe the pain caused me to do that) could be the cause or the mixture of these. There is always the large amounts of Morphine I took because I seem to have been virtually swigging it from the bottle in the case of the Oralmorph!!
So I’m not sure but I have and appt with the pain doc on Monday so I will go through what happened with her then and see what she thinks. I think it’s a combination of things, pain, new drugs, overdosing the Diazepam and Oralmorph together, I don’t know but need to find out. I don’t want to go through that again under any circumstances. The only relative experience I can think of is the Ketamin I had in hospital which had similar effects except that time I was experimented on by aliens!
In any case I will be having a quiet day today to rest up from these experiences, if I feel up to it I may go for a short drive to cheer me up, but that will only be if I feel 100% well in both brain and body. I will be sticking to my usual medication and not using the diazepam as that was brilliant in pain relief but was the last addition to the drug regime so may be the primary cause of this nightmare.
So there we are, that is what has been going on for the last couple of days. I had no way of contacting anyone as my phones and lap top were invisible to me had I even thought of using them! I am sorry for causing any concern but, then again, it is very comforting to me the people cared enough to worry and to try and get in touch.
Thanks to Moomy for calling and thanks to everyone else for caring enough to post and to message checking after my welfare, it has touched me enormously.
So ending with just a simple thanks from me.
Andrew
xxx
Also Sue,
I am a bit worried about your accident injuries, have you seen the docs again if they are still hurting - please let me know! they could have missed something?
Anyway just let us all know you are ok.
And to everyone else who's posts I just read through
I don;t know how else to say it - just thanks very much.
Andrew
xx
l
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