Are friends and family ever enough?

FormerMember
FormerMember
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Andrew, who began this thread, sadly died in September 2008, but his friends wished that his thread remain open in his memory, particularly to promote Andrew's idea of 'dancing away cancer' each Friday at 3pm. Please feel free to post your dance tunes every Friday in his memory.


Macmillan admin


Hello everyone,

this is my topic to start and its a question that has been burning around the back of my mind for the last few days.

I always thought that having a small group of very close friends was enough for anyone, ok you always have work colleagues and other acquaintances but the main group of my friends has remained within a steady little group of five people for nigh on the last twenty years. We have shared almost, if not all, of what life can show you over that period and nothing has every served to tear us very far apart for long.

There have always times when partners/other friends/own family have been more important to us and always been times when we are more important to each other and perhaps have taken some of this for granted and assumed that it will always be thus. I have reached the opinion that I have for certain.

Then you get cancer! Things change I suppose but I have cancer and all of a sudden things are important to me that weren't before and they have an impact on others which were not anticipated.

First I need to say that my friends have been great through this initial part of my illness and there is nothing to say that this position is going to change immediately - rather its me that seems to be changing and not them. I am having doubts about my ability to cope with what is happening to me and what may happen in the immediate future, I am doubting my friends willingness to hear what I have to say when they ask that questions each day "How are you?", I don't want to say "OK thanks" each time when I am not OK,

I want to say "it bloody hurts" and "I don't feel well at all" and "I think its really unfair that I have this disease and you don't" (that one really stings in your head and even if its not at all true, sometimes you can't help yourself thinking it even fleetingly).

Then after that I get guilty about having the disease and having those bad thoughts that seem to go along with it all. I keep thinking that I am asking too much of them now in terms of emotional and physical help and what if their well runs dry later when I need them even more than I do now and they have nothing left to give me. Then I think that that is a really selfish "me, me me" attitude to have and that gets me really down - can you be guilty about a guilty thought which in itself is only a selfish thought about feeling guilty - just how big a knot is that one to unravel.

Anyway before I drive all away completely with this "hymn to the depressed" that brings around the original thought I had;

- can you use up and wear out your friends and family with this thing before you need them most?

Thanks for reading (if you managed to get through the dirge without laughing too much) and any thoughts are appreciated.

Cheers

Andrew



  • Andrew, I guess you've checked out my profile? She's a Trombonist and a pretty good one...i know I say it cos she's our daughter, but actually, she is... plays across all genres, teaches at Trinity Coll of Music, is gallivanting across the country, and indeed the world, still freelance in spite of trying for Orchestral places, but managing to keep her head above water financially though not getting a fortune....just wish she could get to remission....

    Moomy

  • FormerMember
    FormerMember

    Hi,

    sorry, I had read it but didn't just think to go back and re-read for that moment (lazy me).

    Yes, freelance isn't paid that well as far as I know but a mate of my sisters plays the violin and he does freelance in with a quartet he and others started which they do small bookings (even dinner parties etc) which helps. He is sdtill trying to get an orchestra place on a regular basis but has played with the various symphonies in london from time to time.

    I love music of all kinds, a very eclectic tase I got from somewhere (probably parents), just needs to move me in some way. I do hate musical snobbery though, always give it a try before you decide. My sis teaches that to kids in her school in music and all things.

    How is Caz's treatment going, you say on the profile it was difficult, is it any better recently and are you now getting the right drugs etc? If you dson't want to talk or say just tell me....

    Andrew

  • FormerMember
    FormerMember
    Mornin everyone. I hope this give a titter this morning.
    I should'nt admit it, but - I usually follow this instructions to a T.

    Drive thru cashpoint machines


    Please note that the HSBC Bank is installing new "drive thru" cashpoint machines, customers will be able to withdraw cash without leaving there vehicles. To enable users to use this new facility the following procedures have been drawn up.

    Please read the procedure that refers to your own circumstances (Male or Female) and remember them for when you use the machine for the 1st time.

    MALE PROCEDURE.

    1) Drive up to cash machine.
    2) Wind down your car window.
    3) Insert card into machine and enter pin.
    4) Enter amount of cash required and withdraw.
    5) Wind up window.
    6) Drive off.

    FEMALE PROCEDURE.

    1) Drive up to cash machine.
    2) Reverse back the required amount to align car window to cash machine.
    3) Restart the stalled engine.
    4) Wind down the window
    5) Find handbag,remove all contents on to passenger seat to locate card.
    6) Turn the radio down.
    7) Attempt to insert card into cash machine.
    8) Open car door to allow easier access to machine due to excessive distance from the car.
    9) Insert card.
    10) Re-insert card the right way up.
    11) Re-enter handbag to find diary with your PIN written on the inside back pag
    12) Enter PI
    13) Press cancel and re-enter PIN
    14) Enter amount of cash required.
    15) Check make up in rear view mirror.
    16) Retrieve cash and receipt.
    17) Empty handbag again to locate purse and place cash inside.
    18) Place receipt in back of cheque book.
    19) Recheck make up again.
    20) Drive forward 2 meters.
    21) Reverse back to cash machine.
    22) Retrieve card
    23) Re-empty handbag, locate card holder and place card into slot provided.
    24) Restart stalled engine and proceed.
    25) Drive for 2-3 miles.
    26) Release handbrake.

  • FormerMember
    FormerMember
    Morning,

    funny, good job it wasn't a bloke who posted it though!!

    How are you this morning?

    Andrew
  • Andrew, she's had so much in the past, her Prof doesn't want to treat if she is still well, as she has been ever since the trial med, he has just Gemcitabine up his sleeve, then wants her to consider Transplant when she is in remission and well, she's not keen as she remembers only too well how ill she was after her stem cell transplant...He said last time that there is going to be a trial on that for Hodgkin's as this is an area not served well, Hodgkin's is usually so curable that the small number who go on with this disease are in limbo to some extent.

    Caz has been playing with many Orchestras, recently got a chunk of bookings with Halle and LSO, and has been touring with Michael Bolton, due a further tour this year sometime, helped a pal get her CD played and enjoyed by Parky before he retired, she appears on that too...you name it...maybe the orchestras get to hear too much about her other stuff to give her a parmanent job?

    Moomy

  • FormerMember
    FormerMember
    morning everyone,
    christine, loved cashpoint story it was brilliant, hope everyone is feeling ok today, its lovely and sunny here again, but it was yesterday morning as well, then rained all afternoon, so dont think will get my bikini out yet, dont want to frighten the neighbours anyway, andrew hope everything goes well with gp.
    dianne xx


  • FormerMember
    FormerMember
    I suppose its good that the Doc have something up their sleeves for later as that, at least, gives an element of hope for the future. I am never sure with this disease whether it is better to have the versionthat has good prospect or not and find you are the "outside criteria" person.

    I can only say that with mine being incurable anyway it doesn't give your head that added extra place to think about. All I have to do is deal with what I've got and make the most of the what time there is. I know that the drugs I have been lucky to get have a much better rate of slowing things down and possibly controling it for longer periods than were available only months ago! So that is where my hat is hung, slow it down and enjoy.

    We all cope in different ways I suppose and use what we can to get through, I don't know what I will be like in the future weeks and months but as i can't do anything about that I just concentrate on doing what I can now and following all the Docs treatments and plans. Let them worry about that and I will worry about me, but (and a very big but) I still need all that help and support from friends/family and the wonderful people I have met on this forum, like you.

    So lets hope that the satus quo for me and for Caz is the best thing in the world for as long as it goes.

    Andrew

    Hi Christine,


    Thanks Christine - he is late already but at least I am waiting on a comfy seat at home rather than in the surgery waiting room!!!!
  • FormerMember
    FormerMember
    Christine,

    Hope the weather keeps up for your "coffee afternoon", have a good one - I can't drink other than coffee at the moment either as the morphine seems to be enough to tip me over the edge on just one small glass of wine! I miss my glass of vino with lunch (and bottle with dinner).

    Cheers anyway!!

    Andrew
  • Christine, strange you should say that about bagpipes.... our eldest went to the Royal Scottish Academy of music, (the daughter was at the Royal Northern) and had to write an essay about scottish instruments... with his Dad's help in research, he wrote about the pipes, and when daughter got to college she borrowed the research and did a similar essay, he got B for it, she got Bplus! maybe it was more unusual in Manchester, haha!

    Moomy

  • FormerMember
    FormerMember
    Would you bl**dy belive it!!!!

    (That was my Victor Meldrew btw)

    just called surgery to see when doc is due and why is he late to be told;

    "oh we have you down as cancelled for that visit",

    must have been the computer monkey that did it because it sure wasn't me!!

    So now will be going to surgery after radiotherapy, manged to get appt for 5.00pm so will just have to call into there on the way back from the hospital - bit inconvenient but what the hey, go with the flow!!