Andrew, who began this thread, sadly died in September 2008, but his friends wished that his thread remain open in his memory, particularly to promote Andrew's idea of 'dancing away cancer' each Friday at 3pm. Please feel free to post your dance tunes every Friday in his memory.
Macmillan admin
Hello everyone,
this is my topic to start and its a question that has been burning around the back of my mind for the last few days.
I always thought that having a small group of very close friends was enough for anyone, ok you always have work colleagues and other acquaintances but the main group of my friends has remained within a steady little group of five people for nigh on the last twenty years. We have shared almost, if not all, of what life can show you over that period and nothing has every served to tear us very far apart for long.
There have always times when partners/other friends/own family have been more important to us and always been times when we are more important to each other and perhaps have taken some of this for granted and assumed that it will always be thus. I have reached the opinion that I have for certain.
Then you get cancer! Things change I suppose but I have cancer and all of a sudden things are important to me that weren't before and they have an impact on others which were not anticipated.
First I need to say that my friends have been great through this initial part of my illness and there is nothing to say that this position is going to change immediately - rather its me that seems to be changing and not them. I am having doubts about my ability to cope with what is happening to me and what may happen in the immediate future, I am doubting my friends willingness to hear what I have to say when they ask that questions each day "How are you?", I don't want to say "OK thanks" each time when I am not OK,
I want to say "it bloody hurts" and "I don't feel well at all" and "I think its really unfair that I have this disease and you don't" (that one really stings in your head and even if its not at all true, sometimes you can't help yourself thinking it even fleetingly).
Then after that I get guilty about having the disease and having those bad thoughts that seem to go along with it all. I keep thinking that I am asking too much of them now in terms of emotional and physical help and what if their well runs dry later when I need them even more than I do now and they have nothing left to give me. Then I think that that is a really selfish "me, me me" attitude to have and that gets me really down - can you be guilty about a guilty thought which in itself is only a selfish thought about feeling guilty - just how big a knot is that one to unravel.
Anyway before I drive all away completely with this "hymn to the depressed" that brings around the original thought I had;
- can you use up and wear out your friends and family with this thing before you need them most?
Thanks for reading (if you managed to get through the dirge without laughing too much) and any thoughts are appreciated.
Cheers
Andrew
Moomy
Hi Helen and hello again to Liz and Christine,
I went to make the bed but got into it instead and had an hours nap - was great so I must have needed it!
Now up and about again so there we go.
Helen, enjoy the practice and letting those vocal chords have a good excercise.Looks like we all needed extra sleep today - lol - the sun is out and shining here.
Next job is to shave as I haven't bothered for the last few days, the oncology doc asked me to take a pic of my normal beard and then if the Sutent makes it white again tyhen another pic. The drug company (Pfizer) don't care but the docs in the hospital were on the original trials so they like to know what may happen to people on it so the can forewarn them and know that it is normal. So the swollen ankles I have have been photo'd along with the rash on my leg.
At least I am being a bit useful to the docs in the hospital and they are really good to me in fighting to get the drug when the PCT turned down the funding at the first request.
Thats it for the moment so I hope you are all keeping well today and have a fun day before you!
Get up Lazy Bones,
these chaps are just waiting to help you clean your bomb site (as you put it) if you don't start you will never finish, and loads of other banal statements to get you going - I promise you a cyber hug later this afternoon if yuoou get it all done!! Or I promise not to - whichever you prefer - lol.
Come on Betty/Liz
Andrew
xx
Well you should be finished by now then - lol-
I am getting picked up in a minute to go and get some shopping done and then lunch out with my sister and a friend of mine.
Liz - keep up the good work , assuming you have actually started - Helen - have a good choir practice and I think everyone else has been and gone -
So good afternoon to all and will be back later on to catch up and find out what everyone has been doing. The sun is shining here and all is good with the world.
Have fun everyone,
Andrew
xx
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