Are friends and family ever enough?

FormerMember
FormerMember
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Andrew, who began this thread, sadly died in September 2008, but his friends wished that his thread remain open in his memory, particularly to promote Andrew's idea of 'dancing away cancer' each Friday at 3pm. Please feel free to post your dance tunes every Friday in his memory.


Macmillan admin


Hello everyone,

this is my topic to start and its a question that has been burning around the back of my mind for the last few days.

I always thought that having a small group of very close friends was enough for anyone, ok you always have work colleagues and other acquaintances but the main group of my friends has remained within a steady little group of five people for nigh on the last twenty years. We have shared almost, if not all, of what life can show you over that period and nothing has every served to tear us very far apart for long.

There have always times when partners/other friends/own family have been more important to us and always been times when we are more important to each other and perhaps have taken some of this for granted and assumed that it will always be thus. I have reached the opinion that I have for certain.

Then you get cancer! Things change I suppose but I have cancer and all of a sudden things are important to me that weren't before and they have an impact on others which were not anticipated.

First I need to say that my friends have been great through this initial part of my illness and there is nothing to say that this position is going to change immediately - rather its me that seems to be changing and not them. I am having doubts about my ability to cope with what is happening to me and what may happen in the immediate future, I am doubting my friends willingness to hear what I have to say when they ask that questions each day "How are you?", I don't want to say "OK thanks" each time when I am not OK,

I want to say "it bloody hurts" and "I don't feel well at all" and "I think its really unfair that I have this disease and you don't" (that one really stings in your head and even if its not at all true, sometimes you can't help yourself thinking it even fleetingly).

Then after that I get guilty about having the disease and having those bad thoughts that seem to go along with it all. I keep thinking that I am asking too much of them now in terms of emotional and physical help and what if their well runs dry later when I need them even more than I do now and they have nothing left to give me. Then I think that that is a really selfish "me, me me" attitude to have and that gets me really down - can you be guilty about a guilty thought which in itself is only a selfish thought about feeling guilty - just how big a knot is that one to unravel.

Anyway before I drive all away completely with this "hymn to the depressed" that brings around the original thought I had;

- can you use up and wear out your friends and family with this thing before you need them most?

Thanks for reading (if you managed to get through the dirge without laughing too much) and any thoughts are appreciated.

Cheers

Andrew



  • FormerMember
    FormerMember
    hi christine,
    dont think you need to apologise, know what you mean about youngsters thinking we are old, my daughter works in a care home and last summer we went to a fete there, my grandson asked me why i didnt live there, i asked him why and he said because you are old, he never talks quietly so everyone found it funny, and as they were all looking at us i couldnt strangle him! bless him,
    dianne xx
  • FormerMember
    FormerMember
    Andyrh
    When my husband was idagnosed with cancer and given all the mac bumf there was a leaflet regarding a couple of charities that specialise in adventure holidays for people with cancer, if it is remotely of interest I will dig them out and forward the info.
    Perhaps you could let me know if you enjoy sailing as there is a sailing charity that helps people regain confidence etc
  • FormerMember
    FormerMember

    Christine, thats exactly what my mum used to do to me all the time, better not tell your son that you will be doing it when he's in his thirties and forties as well.

    Just had a couple of friends round with their new 10 month old daughter, she's great, children have a way of geting round things and taking your mind away for a time, good to give them back at the end of the visit though!! as she has just started crawling and fully seems to intend on crawling everywhere.

    Its funny how this morning I was in the dumps and at the end of today I'm not, friends popped round and another one has just rung to say he will be driving back from newcastle tonight after dropping his eldest at Uni and so we will be able to have a long chat whilst he's driving back to keep him company, i like the fact that he's asking me for something rather than the other way around, it makes me feel more normal again!

    And on top of that my rota for taxi services to radiotherapy for the four days next week is now complete woth someone for each day - great!

    Juls,

    thanks but never even sailed a boat in my life it was just how people have got around the insurance aspect of holidaying with cancer. A I will never get remission it seems that the normal companies won't touch me for the actual medical cover, so the choice is go without and hope you don't need it. Obviously its easy enough to get flights back but my worry is the cost of any emergency cover in hosital whilst abroad etc and i wondered what other people do in this situation.

    Any idea are welcome.

    Thanks to all who have looked and read the post, I will keep it going anyway I think just for somewhere to think out loud and get ideas from others. Plus I love other peoples stories and thoughts too, the Bus Stop one above is priceless and I can picture that in my mind like some sort of Victoria Wood sketch.

    Eevryone have a good evening and I will keep going.

    Cheers

    Andrew

  • FormerMember
    FormerMember
    hi chris,
    we seem to have hijacked poor andrews thread, funny stories, songs, films, etc, think we all need cheering up, let me know what you think, and title, sorry andrew if you are about, will still pop back to have chat with you
    dianne xx
  • FormerMember
    FormerMember
    hi again,
    i am so useless with this thing, what i was trying to say is should we start our own thread
  • FormerMember
    FormerMember
    Dianne,
    no not at all, thats is what I want to happen to this thread no, people can use it.

    I am trying to encourage my friends to log onto it so that they can see more of what I mean about sometimes not being able to be direct with them. I am also gojng to ask them to use the site as it will help them enormously with their own understanding of what it may be like to have this disease. I hope they will also make contributions of their own to this thread because it must be the same for them, sometimes they won't know what to say to me and I am sure someone on here will read the post and help them out.

    I want this to help me, my friends and anyone else who needs it, if it gets someone throught the day like me today then that is brilliant.

    Keep hijacking!!

  • Andrew, what a great idea to get your friends to log on here, they will get to understand so much......and then won't ever be as scared talking to people with cancer....love...

    Moomy

  • FormerMember
    FormerMember
    thanks andrew, i am not really mad, i lost my husband 3 months ago, and this site is the only thing that keeps me sane, because everyone on here has been or is going through what we went through, i find people pretend they havent seen me, which hurts, or ask too many questions, just being nosey, or the genuine ones just come and talk to me, its upsetting but they understand, take care
    dianne xx
  • Andrew, talking about holidays, my daughter has had a lot of experience with insurance for travelling, she is a freelance musician and that often involves travel abroad, we did a great deal of investigating, she got so wound up by it all that I often did the phone work for her, got quotes etc, we checked with her consultant and specialist nurse, her cancer would not land her in sudden emergencies for a week or two at a time, so she went with a yearly insurance which does not cover her cancer, she's done this for a good couple of years now, the cover for her cancer would be an astronomical amount as she still has active cancer.....

    Moomy

  • FormerMember
    FormerMember
    Diane, you were right to suggest a new thread. Sorry Andrew, we were very rude. Thankyou Andrew for saying we can continue to all post on your thread. I hope we can give you lots of support - and lots of laughs when you need it most. The rest of the time, you can just look on your thread and say - O god, those daft ladies (and gents, if anyone would like to contribute) at still at it.
    Good night to all. Just for tonight, I am going to try to go the bed at a reasonable time, and try to get out of bed tomorrow.
    No promises though.
    xxx
    christine