Andrew, who began this thread, sadly died in September 2008, but his friends wished that his thread remain open in his memory, particularly to promote Andrew's idea of 'dancing away cancer' each Friday at 3pm. Please feel free to post your dance tunes every Friday in his memory.
Macmillan admin
Hello everyone,
this is my topic to start and its a question that has been burning around the back of my mind for the last few days.
I always thought that having a small group of very close friends was enough for anyone, ok you always have work colleagues and other acquaintances but the main group of my friends has remained within a steady little group of five people for nigh on the last twenty years. We have shared almost, if not all, of what life can show you over that period and nothing has every served to tear us very far apart for long.
There have always times when partners/other friends/own family have been more important to us and always been times when we are more important to each other and perhaps have taken some of this for granted and assumed that it will always be thus. I have reached the opinion that I have for certain.
Then you get cancer! Things change I suppose but I have cancer and all of a sudden things are important to me that weren't before and they have an impact on others which were not anticipated.
First I need to say that my friends have been great through this initial part of my illness and there is nothing to say that this position is going to change immediately - rather its me that seems to be changing and not them. I am having doubts about my ability to cope with what is happening to me and what may happen in the immediate future, I am doubting my friends willingness to hear what I have to say when they ask that questions each day "How are you?", I don't want to say "OK thanks" each time when I am not OK,
I want to say "it bloody hurts" and "I don't feel well at all" and "I think its really unfair that I have this disease and you don't" (that one really stings in your head and even if its not at all true, sometimes you can't help yourself thinking it even fleetingly).
Then after that I get guilty about having the disease and having those bad thoughts that seem to go along with it all. I keep thinking that I am asking too much of them now in terms of emotional and physical help and what if their well runs dry later when I need them even more than I do now and they have nothing left to give me. Then I think that that is a really selfish "me, me me" attitude to have and that gets me really down - can you be guilty about a guilty thought which in itself is only a selfish thought about feeling guilty - just how big a knot is that one to unravel.
Anyway before I drive all away completely with this "hymn to the depressed" that brings around the original thought I had;
- can you use up and wear out your friends and family with this thing before you need them most?
Thanks for reading (if you managed to get through the dirge without laughing too much) and any thoughts are appreciated.
Cheers
Andrew
Good morning christine and everyone else
i,m so glad that you liked the funnys did i send you the one with the snow men to i would post it but i dont know how to do it well i have got my fingers crossed for you for that apointment today . Well it four days to go and my sister Jane and the children will be with us . Ihope you have all had a fun weekend .
much love liz xxx
Hi Liz
No I did'nt receive your snowman pic. Could you send it again.
My appointment wasn't for today. My husband was told to phone today and they would see if they could get me in before my set appointment on 12th Feb. My husband phoned and was told that the consultant is on holiday until 12th Feb so I cant be seen any sooner.
He then asked if I could be seen privately and GUESS WHAT!.........I can see a private consultant tomorrow afternoon. MONEY TALKS!...................It makes me SOOOOOOOOOOOO ANGRY.
Now I have to pray that weather hold off long enough for us to get to Yeovil tomorrow afternoon, although even this appointment is not finalized yet as I'm still waiting for my GP surgery to confirm that they have faxed the private referal to the consultant..
Just looking over the hills towards Bristol and it looks like its snowing again........AAAAAAAAAAAAAAARRRRRRRRRRRRRRHHHHHHHHHHHHH.
Bring on the sunshine:
Christine xxxxxx
Of course you can i have just sent it to you plus i have used it as my site picture
much love liz xxx
hmmm, Christine, sounds as if the forecast folk are really pretty correct, they said it'd come over from the south west mostly as snow, but then warm up gradually.....it can't warm fast enough for me, want to get rid of it now!
my love and hugs to you all on here
Moomy
Me too Helen, cant wait to see the end of this weather. I'm still hoping that we will just get rain tomorrow as the temperature is rising.
Liz, I got your E-mail, the snowman pic is excellent but a bit spooky. It could be from an old B movie......'The invasion of the Snowmen'.
Son driven back down to Exeter to visit his friend again. It always makes me anxious when they're driving about in this weather. His friend had his second operation yesterday but doctors saying he still needs more and it will be at least 2 years before he can walk again because both his legs were broken and his leg artery was torn. Poor lad was halfway through a doctorate at Exeter Uni. Shouldn't happen to anyone, let alone such a passive and likable young gentleman.
Christine
xxx
Christine, just a little tip - I work with the Haematology Consultant secs at the hospital, and it is a good idea to phone the secretary direct and ask them to 'pull' the GP's referral through (esp for private patients!) so that they are doing the chasing not you!
Sooo glad the snow's disappearing. F x
A VERY good suggestion, Doctor's secretaries are worth emrbacing, they can be simply amazingly good and helpful!
Moomy
Good morning everyone
You'll never belief it! After 4 weeks of discomfort and worry, I've managed to get an appointment at the private ENT clinic in Yeovil for 4pm today, and today I woke up and my ear FEELS MUCH BETTER. Typical!
As my GP as been so useless and dismisses everything as being 'down to my condition', I am going to keep my hospital appointment just to get a second opinion.
Not much else happening today. Still cant get out as although the roads are clear, the pavements are still lethal. Poor old snowman is in a worse condition than me. His head fell off the morning......lol.
Wishing everyone a good day.
Christine xxxx
Christine, it's Murphy's Law! Anyway, I do hope they will be able to help you for if anything like this happens again....
hope you are all ok today, the snow is melting but not so fast that there will be awful floods......keep well, warm and safe, my love and hugs
Moomy
Good Moning everyone.
I managed to get to my ENT appointment yesterday. I had a heaing test and the consultant said that my hearing had not deteriorated from my last test. I do however had very severe BPPV (Benign paroxysmal positional vertigo) again. He gave me some treatment (basically putting my head into different possitions) which left me feeling very sick, a bit like sea sickness and I've got to sleep sat nearly upright for about 3 days.
DAMN IT! ITS SNOWING AGAIN. Woke up to another covering of snow this morning, and its snowing very heavily as I type.
I think I'm going to spend the day comfort eating........lol.
Christine
xxxx
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