Andrew, who began this thread, sadly died in September 2008, but his friends wished that his thread remain open in his memory, particularly to promote Andrew's idea of 'dancing away cancer' each Friday at 3pm. Please feel free to post your dance tunes every Friday in his memory.
Macmillan admin
Hello everyone,
this is my topic to start and its a question that has been burning around the back of my mind for the last few days.
I always thought that having a small group of very close friends was enough for anyone, ok you always have work colleagues and other acquaintances but the main group of my friends has remained within a steady little group of five people for nigh on the last twenty years. We have shared almost, if not all, of what life can show you over that period and nothing has every served to tear us very far apart for long.
There have always times when partners/other friends/own family have been more important to us and always been times when we are more important to each other and perhaps have taken some of this for granted and assumed that it will always be thus. I have reached the opinion that I have for certain.
Then you get cancer! Things change I suppose but I have cancer and all of a sudden things are important to me that weren't before and they have an impact on others which were not anticipated.
First I need to say that my friends have been great through this initial part of my illness and there is nothing to say that this position is going to change immediately - rather its me that seems to be changing and not them. I am having doubts about my ability to cope with what is happening to me and what may happen in the immediate future, I am doubting my friends willingness to hear what I have to say when they ask that questions each day "How are you?", I don't want to say "OK thanks" each time when I am not OK,
I want to say "it bloody hurts" and "I don't feel well at all" and "I think its really unfair that I have this disease and you don't" (that one really stings in your head and even if its not at all true, sometimes you can't help yourself thinking it even fleetingly).
Then after that I get guilty about having the disease and having those bad thoughts that seem to go along with it all. I keep thinking that I am asking too much of them now in terms of emotional and physical help and what if their well runs dry later when I need them even more than I do now and they have nothing left to give me. Then I think that that is a really selfish "me, me me" attitude to have and that gets me really down - can you be guilty about a guilty thought which in itself is only a selfish thought about feeling guilty - just how big a knot is that one to unravel.
Anyway before I drive all away completely with this "hymn to the depressed" that brings around the original thought I had;
- can you use up and wear out your friends and family with this thing before you need them most?
Thanks for reading (if you managed to get through the dirge without laughing too much) and any thoughts are appreciated.
Cheers
Andrew
Thank-you helen, dotte to for your christmas wishes merry christmas to all
love liz xxx
Hi all.
I've been having a bit of a hearing problem over the past couple of weeks which now is getting worse every day. Went to the Docs this morning and was told that 'something' is blocking the tube that leads from my ear to my throat. PANIC!.
Doc said (under the circumstances) I need an Urgent hospital appointment with the Ear Nose and Throat specialist. Got home and phoned the hospital booking service and was given my URGENT APPOINTMENT! for 12th Feb 2010. PANIC AGAIN!
The only options left to me is to either wait until my appointment in 6 weeks time, and pray I'm still alive, or make another PRIVATE appointment, and expect my hustand to pay a small fortune for it.
SHIT SHIT SHIT!!! (Excust the language but its the least offensive expletive I could think of).
Oh what an end to an otherwise excellent year.
Christine
xxxx
Christine you may have another 2 options depending upon your GP, firstly ask him if he will refer you under the 2 week ruling which is for anyone with suspected cancer to be seen straight away. Or if there are other hospitals near you ask what there lists are like and see if you can be seen sooner.
your GP should be able to advise and help on both accounts if they are options he/she will support.
good luck .... john
Dear Christine,
We are always here for you dear friend and you can rant and
swear as much as you like, if you decide to wait till Feb or go
private will have fingers crossed for the best possible outcome
for you, have sent you email too
Love and hugs to you and everyone else on here
Dianne xxxxxxxxxxxxxxxxxxxxx
Hi there Dianne and John,
and thank you both for your replies to my screams for help and sympathy.
Dianne, its good to hear from you and I hope you've had a good Christmas. I did get your Card, on Christmas Eve.....good old post person trudging through the cold and ice to get it to my door. I hope you got mine. The picuture on the front was of my Summerhouse in the snow we had last January.
John, thank you for your support. Sadly I dont apply for the 2 week appointment scheme because it is only if you have suspected Cancer. I do have four hospitals in my area (Bristol, Weston, Taunton and Yeovil) but still 6 weeks was the earliest out of all four. I do tend to get the 'run around' from my GP and oncologist.....each trying to pass the buck. I did tell my oncologist just 3 weeks ago that I was having problems with my ears, and he advised me to contact my GP and ask him to check it out and refer me to an EN&T specialist..............I guess I should have done what I was told and not waited until after Christmas......slap on the wrist! I expect I'll bite the bullet (or penny) and get a private appointment....and think myself very lucky that I can. Anyway, I hope you have been feeling strong enough to enjoy your Christmas and I hope your treatment is working well for you and will soon be complete. At the moment I'm just picturing all your bits out on the operating table........not the best of sights.....hehehe. All the best of luck to you.
I'm off upstairs to my wardrobe now to see if I've got 'anything to wear' (or anything that fits me) for tonight as I'm going to a 60th Birthday party. It will do me the world of good to see some smiley faces and a a tipple or two.
Christine
xxx
Hi Christine,
Just read your post and wanted to tell you I also will keep everything crossed for you too love, I will pray that all goes well and it is nothing sinister dear lady.
Enjoy your party, your so right it will do you good to get out and take your mind off things for a little while.
Love and many hugs
Maryxxxxxx
Hi Christine
I’ve just caught your post here and want to add my best wishes and support for you. First of all, please try not to worry as there are many things that can cause hearing problems, so try not to jump to conclusions or make yourself worry unecessarily. Quite naturally your GP is referring you to get this checked out as soon as possible, although having to wait until February is a bit extreme I agree. If it brings you peace of mind then I would definitely opt for a private consultation. I’ll keep everything crossed and pray that all will be well.
Also, many thanks for your Christmas card, it was lovely to receive it and typically thoughtful of you. The snowy picture made me imagine how your art studio / gazebo might look in your garden.
We are all here for you and I’m sending you healing thoughts along with big hugs (((((((((((Christine)))))))))).
Peace and Love
Hi everyone,
Mary, and Crystal, thank you for your kind thoughts. Last nights party was wonderful. I met up with so many people I hadn't seen for ages and we all had a good laugh and drink together. We got home at 3am this morning, hence I'm still in bed with a very fuzzy head (at least it takes my mind of my buzzing ears). I think this is where I'll stay until at least 3pm, then I may get up and watch the second episode of 'The Day of the Trifids' which I missed last night. Oh! and a trip out to B&Q is on the cards as well. Yes! another exciting day in the Christine household.........NOT..........hahaha.
I'm glad you liked the picture of my Summerhouse in the Snow. I think I prefer it in the Summer when its surrounded by sunshine and flowers.
I hope you both have a good day. And that goes for everyone else as well.
Liz: I've been thinking of you lately and I hope everything is OK in Liz Land.
Lots of love
Christine
xx
Hello Christine
All is ok in liz land its very quiet but thats nothing new i have just read about the problems you are having with your hearing and i will keep everything crossed for you plus i will say a prayer for you to my dear friend try not to worry we are all thinking about you . I hope that everyone else is as well as can be plus i do hope you all have a happy new year.
much love liz xxxxxxxxx
Thinking of Andy and his family and friends, and so sorry for his loss.
I'm sure he won't mind as it's Thursday and I have every intention of dancing at my very best tonight! This is the first time for a long time that I feel I will have the energy to do it properly - with fizz too! Hope many of you will join me in raising a glass for Andy, old friends lost and found, families and to a great new year full of hope and memories.
The answer in my recent experience to Andy's questions is that - yes, you/we can use up our family especially and may have to separate for a breathing space for a while - but I can also say that given the love and determination we all have, that slowly and gently we will come together again, stronger and better equipped to support each other. In the past two years I lost my mum, got cancer, got remission, lost my brother in law and my cousin - I also lost the support of my grieving family for most of that time, after my all clear. I wasn't able to support them, and they misunderstood - but we are all now gently showing each other that we never really stopped loving or caring, and hugs and kind words now are far brighter than ever before.
So from loss comes many gains, if you are prepared to be patient and keep hope and faith in yourself and your friends and family.
Wishing Andy's family, friends and everyone here, hope health and happiness for 2010.
Fi x
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