Are friends and family ever enough?

FormerMember
FormerMember
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Andrew, who began this thread, sadly died in September 2008, but his friends wished that his thread remain open in his memory, particularly to promote Andrew's idea of 'dancing away cancer' each Friday at 3pm. Please feel free to post your dance tunes every Friday in his memory.


Macmillan admin


Hello everyone,

this is my topic to start and its a question that has been burning around the back of my mind for the last few days.

I always thought that having a small group of very close friends was enough for anyone, ok you always have work colleagues and other acquaintances but the main group of my friends has remained within a steady little group of five people for nigh on the last twenty years. We have shared almost, if not all, of what life can show you over that period and nothing has every served to tear us very far apart for long.

There have always times when partners/other friends/own family have been more important to us and always been times when we are more important to each other and perhaps have taken some of this for granted and assumed that it will always be thus. I have reached the opinion that I have for certain.

Then you get cancer! Things change I suppose but I have cancer and all of a sudden things are important to me that weren't before and they have an impact on others which were not anticipated.

First I need to say that my friends have been great through this initial part of my illness and there is nothing to say that this position is going to change immediately - rather its me that seems to be changing and not them. I am having doubts about my ability to cope with what is happening to me and what may happen in the immediate future, I am doubting my friends willingness to hear what I have to say when they ask that questions each day "How are you?", I don't want to say "OK thanks" each time when I am not OK,

I want to say "it bloody hurts" and "I don't feel well at all" and "I think its really unfair that I have this disease and you don't" (that one really stings in your head and even if its not at all true, sometimes you can't help yourself thinking it even fleetingly).

Then after that I get guilty about having the disease and having those bad thoughts that seem to go along with it all. I keep thinking that I am asking too much of them now in terms of emotional and physical help and what if their well runs dry later when I need them even more than I do now and they have nothing left to give me. Then I think that that is a really selfish "me, me me" attitude to have and that gets me really down - can you be guilty about a guilty thought which in itself is only a selfish thought about feeling guilty - just how big a knot is that one to unravel.

Anyway before I drive all away completely with this "hymn to the depressed" that brings around the original thought I had;

- can you use up and wear out your friends and family with this thing before you need them most?

Thanks for reading (if you managed to get through the dirge without laughing too much) and any thoughts are appreciated.

Cheers

Andrew



  • FormerMember
    FormerMember

    Hi Christine and Liz

    I think I'm back at full revs again.........I'm trying...............and some would say 'VERY'!!!!!!!!!!!!!! Hope you both have a good peaceful day tomorrow...........

    Love and hugs

    Dot xxxxxxxxxxxxx

  • FormerMember
    FormerMember

    hi everyone

    a quick hello .....i have spent the day writing my piece that i am reading out tomorrow at my friends funeral ......it was hard and emotional , but somehow i found the inner strength to do it .

    have found a lovely poem to read too .....it starts wth the line ' we pass this way , but once '

    i feel very flat ,and have tears inside that wont/cant come out .

    paul has been an absolute honey , he has been wonderful in helping me come to terms with it all .

    love to you all
    suexxxxxxx




  • FormerMember
    FormerMember
    Sue, im thinking of you today and hope everything goes ok, the poems sound lovely
    have sent you p/m as well (((((((((( HUGS ))))))))))

    Hope everyone else on here is ok, love and hugs to you all
    Dianne xxxxxx
  • FormerMember
    FormerMember
    Hello everyone. I am completely new to Share and have only just started to read this thread. I hope it is alright to add a comment- I think the dance thing is fantastic and although I didn't know Andrew when he was alive I have found his posts really helpful and all of yours too. My step-dad has been diagnosed with terminal cancer- secondaries from his original prostate are in all his bones and look as though they are marching at great speed into his spinal column. I have been really shocked at how emotionally torn up I feel- also watching my Mum struggle with caring for him and all the practical issues. It is true about how friends react very strangely, but it is my dad's reaction too. He hasn't wanted to see many of his friends and seems to only want to stay in his room and rely on mum for everything. We are all in a bit of a pickle. He was diagnosed in March and is already practically bed-ridden and in a lot of pain. It is very hard seeing the people from social services and the surgery talk to him as though he were an imbecile- I want to shout at them 'Don't talk to him as though he doesn't understand you- he is still my Dad' . Oh dear lots of conflicting emotions- keeps welling up and taking me by surprise in the strangest places. Sorry to go on but haven't really talked to anyone before and its bubbling out. Thanks for listening and I will be dancing on Friday before I go to pick my kids up from school.
    Helenxxx
  • FormerMember
    FormerMember
    Hi ( MargoLB) Helen. I'm glad you have decided to post your feeling on this thread, though very sad to hear about your poor dad. I cant speak from a carers point of view, only a patients point of view, and can tell you that it not unusual for your dad to be cutting himself off from his friends or even other members of your family. His diagnosis is still so recent and I expect he is still trying to come to terms with what is happening to him. At the moment he will be in a whirlpool of emotions: disbelief, anger, fear (or maybe I should say, unbelievable terror), saddness, and even a strange sense of happiness, wonder and delight when he looks at the world. Its only when we know for sure that our time is limited that we truely see the wonders that this world has to offer.

    All I can say at the moment is just let him work through all his emotion and just be there for him when he needs you. Dont try to understand his emotions, just hold his hand and tell him you love him.

    Unfortunately, it is much harder for you as a carer or family member. You are the one who has to hold in your emotions while you are infront of him. If there's one thing I have noticed its that we the patients are the ones getting all the sympathy and help but the carers and family members are often forgotten in all the termoil, and this is where your friends and family can help, simply by a being there for you when you need to cry, or just need a warm hug. There are many on this site who understand exactly what your going through, and we're all here to help in any way we can.

    I'm so glad to hear that you have been joining in the Friday 'Dance the C**p out of Cancer', its powerful medicine......even if it only lasts for 3 or 4 minutes, once a week. I will be thinking of you and your dad during this comming Fridays Dance, and wishing you much strength.

    Much love
    Christine
    x
  • FormerMember
    FormerMember

    Thank you Christine- I think it is a great thing to have all these people to talk to- sometimes you just can't face going over it all the people you see every day- I think they must be so fed up with me. I am trying to think of a good song for Friday- I will let you know what I will be boogeying to- something very noisy I think!

    Hx

  • Hello to you all, Christine, yes, thanks, have recovered fine, I slept like mad that night! Hope you are doing ok, yourself, as well as looking after your Mum

    Another Helen, welcome, Christine has given you so much help, being an excellent writer with experience unfortunately of both being a patient and a carer too! May we call you Margot? cos I'm Helen too? maybe we should stick to my moomy on here so we don't get confused?....(thinking aloud!) My daughter too says she thinks it is harder being the carer, she watched me trying always to be busy and occupied while i was in isolation with her, sewing, reading or whatever, when she was awake enough to be aware!

    Liz, you are doing so well, getting fit and so on, bless you!

    Sue, I am often thinking of you and your dear friend, and sending you strength to manage....I believe in you and know you will be fine!

    Dianne, hope your wee man is still coping at school....

    Dot, good to see you here, too

    Moomy

  • FormerMember
    FormerMember
    Call me Margo - thats fine, it's my nickname. I think I'm going to dance to Roachford- Cuddly Toy on Friday but I have still got time to change my mind haven't I?

    I had a good chat with my Mum today and she is going to talk to the GP about what sort of help she can get as she hasn't been out of the house for longer that 30 minutes since Dad was diagnosed in March. He is very fretful if she goes too far from the room but he also knows it is a burden for her- everyone is very confused and full of strong feelings. I am so grateful for everyone's thoughts on this thread- and I will be thinking of you all on Friday.
    Margo
  • FormerMember
    FormerMember
    Morning all





    Sorry Margo but I didn't see your post last night..........it's hard standing by watching loved ones suffer. Often it feels like we have the same pain too............or perhaps it's just a wish to take it away from our dear ones!!?? I too am a carer - my hubby has Myeloma. He's in remission just now - but I think this is harder as it's like living with a time bomb .....and I can't defuse it or find the clock to stop it!!!!! We don't know when or where it will flare up again. I'm not looking for sympathy - just putting you in the picture - read my biography - there's more in there.......





    On to practical things..............do you have a Macmillan nurse to help with the care of your Dad?? She (or he) is invaluable in sorting out medications and acting as a 'go-between' with Social Services/doctors/ Benefits etc................they also provide a 'listening ear' for the family too - may be able to point you in the direction of counselling if it's needed!!! Both yourself and your Mum need to take 'me' time - where you can just be yourself without worrying. I make cards and do other crafts to take my mind off things..............But if you can get out for a couple of hours that's better. If your Dad needs someone to stay with him that too can be arranged. Respite care may also be available. Our local hospice has a carers' group where you can go and 'chill' for a couple of hours........complimentary therapies such as massage may also be available there!!! To be recommended!!!!!





    Hope this helps you??? If all else fails - just come on here and yell, scream, shout, rant and rave till your heart is quiet again............We will hear you and offer a shoulder to lean on and cyber-tissues to wipe your eyes...............





    Love and (((((((((((((hugs)))))))))))))))))) for you today to help you on your way.....





    Dot xxxxxxxxxxxx





  • FormerMember
    FormerMember
    3D Prom Queen This is Liz after her good hair day.
    Woman In Rolle

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    This is me, most days.


    Having a problem with my eye sight at the moment. My right eye is flashing a zig zag pattern over everything.

    I hope everyone has had a pleasant day. I'd better go to bed now as this flashing is driving me nuts.

    Christine
    xxx