Are friends and family ever enough?

FormerMember
FormerMember
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Andrew, who began this thread, sadly died in September 2008, but his friends wished that his thread remain open in his memory, particularly to promote Andrew's idea of 'dancing away cancer' each Friday at 3pm. Please feel free to post your dance tunes every Friday in his memory.


Macmillan admin


Hello everyone,

this is my topic to start and its a question that has been burning around the back of my mind for the last few days.

I always thought that having a small group of very close friends was enough for anyone, ok you always have work colleagues and other acquaintances but the main group of my friends has remained within a steady little group of five people for nigh on the last twenty years. We have shared almost, if not all, of what life can show you over that period and nothing has every served to tear us very far apart for long.

There have always times when partners/other friends/own family have been more important to us and always been times when we are more important to each other and perhaps have taken some of this for granted and assumed that it will always be thus. I have reached the opinion that I have for certain.

Then you get cancer! Things change I suppose but I have cancer and all of a sudden things are important to me that weren't before and they have an impact on others which were not anticipated.

First I need to say that my friends have been great through this initial part of my illness and there is nothing to say that this position is going to change immediately - rather its me that seems to be changing and not them. I am having doubts about my ability to cope with what is happening to me and what may happen in the immediate future, I am doubting my friends willingness to hear what I have to say when they ask that questions each day "How are you?", I don't want to say "OK thanks" each time when I am not OK,

I want to say "it bloody hurts" and "I don't feel well at all" and "I think its really unfair that I have this disease and you don't" (that one really stings in your head and even if its not at all true, sometimes you can't help yourself thinking it even fleetingly).

Then after that I get guilty about having the disease and having those bad thoughts that seem to go along with it all. I keep thinking that I am asking too much of them now in terms of emotional and physical help and what if their well runs dry later when I need them even more than I do now and they have nothing left to give me. Then I think that that is a really selfish "me, me me" attitude to have and that gets me really down - can you be guilty about a guilty thought which in itself is only a selfish thought about feeling guilty - just how big a knot is that one to unravel.

Anyway before I drive all away completely with this "hymn to the depressed" that brings around the original thought I had;

- can you use up and wear out your friends and family with this thing before you need them most?

Thanks for reading (if you managed to get through the dirge without laughing too much) and any thoughts are appreciated.

Cheers

Andrew



  • FormerMember
    FormerMember

    Hi fran and Clare,

    thanks for your thoughts, I am very quickly realising that there is much to know about human emotions and peoples preparedness to help out. I have decided that thisbrighter/righter side of humanity is the one I shall be drawn towards and ignore the other.

    There are people in this world who put on a front for the rest of the world, I can see that from peoples replies ot this thread and the stories that they have. I cannot imagine what goes through peoples minds when they realise they have this disease that is going to test them to the limits. Then they get blown off by the very people they expected to help them, that is just so wrong.

    I can't blame these people for what they do and only they know why they feel the need to act that way but I can only hope that the ones left fighting find others stronger and better in every way. The world spins round every day and eventually some of these people found wanting will actually need help themselves.

    They may find it in others and, if the are really lucky, they may find it in the ones they once deserted. That would be a salvation of the soul that they would not really deserve but if they are in anyway alive they would grasp it with both hands and hang on for dear life.

    All I can say is from experiences so far over the last few days my soul has been lifted beyond recognition. I have never witnessed such selfless offers of help from complete strangers to other complete strangers and, if that were not enough, not even in person but via the ether of cyber space!

    If that is not enough to bliss the crap right out of life then I don't know what is.

    I hope that whatever your futures brting it is lines with peace and happiness just because you deserve it. My thoughts to you, your (remaining) familes and most of all your old and new friends who have helped you.

    Thanks for your kind words to me andhave a great life.

    Andrew

  • FormerMember
    FormerMember
    Anyway - now back after hospital visit, radiotherapy was delayed by an hour by someone who couldn't get their jumper off and on very quickly, be still my patience!! and next time wear a cardigan or something.

    The dismount off the table scored a perfect 6 for technical ability and about 4.1 for artistic quality, oh for shame I was asked if I needed help!!!!!!

    The doc has decided that I am not beyond the pale as far as the constipation is concerned so the district nurse will perform a magic enema on me on Saturday of nothing has shifted, way to look forward to the weekend - lol

    So I have just eaten a spicy curry, chicken jalfrezi, with whole green chillies to try and move the process along a little in a more natural sort of way.

    The infection now has its own anti-biotic to make it go along its own way. that will just add to the daily total meaning 34 pills per day for the next few days at least. Anyway I shall be glad to see the back of it. The doc seemed surprised that the only thing bothering me was the infection pain and that the cancer stuff was being ignored, just had to explain that I needed to get rid of something I could control and get myself back on track for hols and return to working and ordinary things like that. Not sure why he was surprised, maybe I am the only one who wants to get my life back perhaps he thought I would spend the rest of my time moping about waiting for god.

    I hope that every one else had a good afternoon and that all is going well with each of you.

    Best wishes for now,

    Andrew
  • FormerMember
    FormerMember
    Is retrograde a backward step?

    This question came up this morning, I have got used to changes in pain and what is happening to my body through the lasy few weeks but this morning the pain I have is like it was 6-8 weeks ago. move and it hurts in my back and left leg - BUT - move and it goes off after a while and gets easier!!

    A few weeks ago this is what I had to deal with each morning for about 2 hours and then it got better so am hoping that this will be the case going forward so long as this is not just another transiatory thing,

    The main thing in the title though is a bit broader than just this morning and I was wondering of others feel the same sometimes as we all want to turn the clock back. Perhaps when you have cancer a step forward is not necessarily a good thing and a step back can be.

    We are trained not to look back and not to worry about the past and to concentrate on the future buy why when sometimes it is a better place to look and be? Surely if things are going backwards and back is better then a celebration of going back should be in order?

    I am going to ber happy in my backward facing today and hope that my life continues in reverse, even if its only for one day.

    Have a great day today to all who read this and if you have anything to add, or argue with me over this, then please feel free!

    Cheers

    Andrew
  • FormerMember
    FormerMember
    Hi Andrew, I know I've sent you a private message, but I would like to openly say:
    G O O O O O O O D M O O O O O R N I N N N N N N N N G.
    and hope it gets better.

    Luv
    Christine.



    Hi everybody else, hope you all have a G O O O O O O O D D A A A A A A A Y to.

    Luv Christine.
  • FormerMember
    FormerMember
    hi everyone,
    andrew, hope your backward facing day is going well, and i hope your pain has eased off a bit, well a lot! take care,
    christine,
    hope you had good day with your mum yesterday, and you have a good day today also, i am waiting for my daughter to pick me up as we are going into town, so will pop back on later
    dianne xx
  • FormerMember
    FormerMember

    Dianne and Christine,

    good morning to both of you!!

    Thankls the pain has actually alomost gone now and I am feeling so good its unbelievable, if this lasts from now on after the radiotherapy then I will say, give me that early morning pain that I can get rid of and leave me like this for the rest of the day - brilliant.

    I hope you all have an great day too and that something new interesting and exciting happens to all of us today!!

    best fo fun

    Andrew



  • FormerMember
    FormerMember

    hi andyrh .spoke to you on other another thread , just wanted to say hello .hope your 'brilliant day ' continues ,,,,,,,,,,,,,,amazing how just being 'pain free' can make such a difference to your day .

    on the subject of your thread , my best friend ' lost ' 2 friends when she was diagnosed , they had been friends for 30 years ........why she still does not know ..........
    suexxxxxxxxxx

  • FormerMember
    FormerMember

    Hi Sue,

    thanks very much for your thoughts. I was talking to my sister last night about this subject. Her very best friend from school days had breast cancer which went away and then came back. She died very quickly the second time around, we think she was just too tired of it all, but the same as your friend happened and people just disappeared. My sis thought it was just too much for them on a second occaision but we will never know.

    I just know now that the normal response from people seems to be "bring it on, I am here for you".

    Best to you today and please keep in touch whenever you need.

    Andrew

  • FormerMember
    FormerMember
    Iam feeling rather down today.

    The sun is shinning outside and I am cleaning the kitchen. Pans haven't been washed for days.

    At least I am going out with my friend tonight so hopefully that will bring me round.

    I am sure things are going on (that I can't say on this board yet) til I get to the bottom of it.

    Don't know what else to say at the moment.

    Lots of love
    Fran
    xx
  • FormerMember
    FormerMember
    O Fran. Sorry you've got the pots and pan blues. Maybe when you made them all sparkle and shine you'll will feel like sparkling and shinning again yourself. Hope you have a very pleasant evening out with your friends.
    If you need to talk - just go ahead - if not here, then on the friends line.
    Luv
    Christine.