BOB JK My diary of kidney cancer (to be continued)

FormerMember
FormerMember
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Hi, My name is Bob and I live in Cambridgeshire. I am married with an 8 yr old daughter and three older step sons. Up untill the end of last year everything was tickety boo having recently moved to a new house which we love. Work was busy but enjoyable. I am Manager of an electrical companys maintenance department and my Wife, Linda was enjoying her job as a Nurse. The three boys are buying there own house nearby and all work locally.
In November I went to my Doctors with a small "cyst" on my chest. After a couple of referals and many Xrays, pet scans, bone scans and CT scans I was told the news everybody dreads. My lump on the chest was a secondary cancer of which the primary was in my left Kidney. I was fast tracked to the Royal Brompton, under the expert care of Mr Laddas who informed a long and complicated operation would need to be carried out to remove the bone tumor and surrounding bone which involved two ribs,my collar bone and chest bone. I did not have time to panic, the operation was carried out the next day over 10 hrs. After nearly two weeks in the Brompton I am recovering well from this op but I have since been told that the Cancer is in both kidneys as well as small mets in both lungs. It seems at the moment further ops are out the question and i have been put on the drug Sutent. I am one week into this and so far so good. I do not know what the future holds but I have to remain positive.
  • FormerMember
    FormerMember in reply to FormerMember

    Thank you all for your wise words and Debbie, I hope you husband responds well to the whole brain radiotherapy.

    At the moment, we are all coping well but I feel angry as when it was suggested to have the partial nephrectomys, it was never once suggested to us that it was a high risk, or any risk in fact, that mets could form in the brain. Perhaps we would have declined the nephectomys had we have known the risks, perhaps because I had been on the Sutent so long, it was thought it could stop working at any time and so it could have been a good option. This horrible business is full of perhaps's and hindsite is a wonderfull thing.

     Myself and Kate were up quite early and although we did not talk directly about my illness she was understandably clingy. We talked about everything else though and then played on our computers, good old farmville, a great distraction. Today I am going to see my mum, although my sisters are all in the loop my mum needs to be told. This again will be difficult but has to be done. She is not well herself and my big fear is that if she gets too down about my illness, she will give up herself.  At the moment she keeps saying things will be fine and ill be ok. Now its a real possibility that things will not be ok and I need to gently tell her that. My dad died from cancer as well as some good friends of hers so she nows the ropes and im sure deep down knows anyway.

     

     

  • FormerMember
    FormerMember in reply to FormerMember

    strength.jpg Strong You Are image by VickiLynn2009

    sue xx

  • FormerMember
    FormerMember in reply to FormerMember

    Hi Bob

    I feel your fear for the future, don't give in to it you can still come through this! I hope the meeting with your Mum goes well,  it's so hard to tell our nearest and dearest the whole truth, I don't tell my sons half of what is going on in my treatment process, I don't want them to dwell too much on it, I know in their hearts they know how fragile life has become for me and they will cope when my time comes, but not for a long time yet!

    I haven't been brain scanned since diagnosis so who knows what's happening up there I don't dwell on that either.

    I hope you can find the strength to overcome this next hurdle Bob and I am sending you my very very best wishes that all goes well for you.

    We can beat this cancer Bob we have to for those who rely on us.

    Jackie xx

  • FormerMember
    FormerMember in reply to FormerMember

    dear bob

    i am thinking of you all hugs and love to you xxx

  • FormerMember
    FormerMember in reply to FormerMember

    Dear Sir Bob

    Lots of very wise words ahead of me here, (couldn't post until now as Dad's house is t'internet-free!), but I am so so sorry to read of your latest news, sh*tty news at that, and the effect its having on you and your lovely family. What a decision to make.  A Mac-wide hug for you, Linda and Katie.... much love

    Leah

    xxx 

  • FormerMember
    FormerMember in reply to FormerMember

     Hi Bob - I have no words. Just sending you and Linda and Katie love and hugs.

    Mo

  • Bob, more love and big ((((((((((((((hugs)))))))))))))) to you all

    Moomy

  • FormerMember
    FormerMember in reply to moomy

    Dear Bob and family,

    Just want to add my heartfelt love and best wishes for hard decisions and tough times ahead.

    Di X

  • FormerMember
    FormerMember in reply to FormerMember

    Love and (((((((((((((((((((hugs)))))))))))))))))) Bob, Linda and Kate xxxxxxxxxx

  • FormerMember
    FormerMember in reply to FormerMember

    Just managed to get teary eyed again at the earthquake disaster appeal new single, "everybody hurts". Kinda sums up how I, my family and friends feel at the moment