BOB JK My diary of kidney cancer (to be continued)

FormerMember
FormerMember
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Hi, My name is Bob and I live in Cambridgeshire. I am married with an 8 yr old daughter and three older step sons. Up untill the end of last year everything was tickety boo having recently moved to a new house which we love. Work was busy but enjoyable. I am Manager of an electrical companys maintenance department and my Wife, Linda was enjoying her job as a Nurse. The three boys are buying there own house nearby and all work locally.
In November I went to my Doctors with a small "cyst" on my chest. After a couple of referals and many Xrays, pet scans, bone scans and CT scans I was told the news everybody dreads. My lump on the chest was a secondary cancer of which the primary was in my left Kidney. I was fast tracked to the Royal Brompton, under the expert care of Mr Laddas who informed a long and complicated operation would need to be carried out to remove the bone tumor and surrounding bone which involved two ribs,my collar bone and chest bone. I did not have time to panic, the operation was carried out the next day over 10 hrs. After nearly two weeks in the Brompton I am recovering well from this op but I have since been told that the Cancer is in both kidneys as well as small mets in both lungs. It seems at the moment further ops are out the question and i have been put on the drug Sutent. I am one week into this and so far so good. I do not know what the future holds but I have to remain positive.
  • FormerMember
    FormerMember in reply to FormerMember

    Dear Bob,

    My heart aches for you all, god forbid this bloody disease like you love I bloody hate it. I am also in tears tonight reading your heart felt posts.  Sending you healing vibes in abundance in the hope that they help you love just a little. My thoughts are with you all tonight.

    My love to you and your dear family and of course dear little Kate.

    Maryxxxxxxxx

  • FormerMember
    FormerMember in reply to FormerMember

    So so sorry Bob, I wish we could all take this pain and heartbreak away from you all. I don't know any of you, but through this site I feel I do and I cant stop my tears from falling as I type this. I feel for you all so much.   Bloody cancer - I HATE it too!!!

    Thinking about you, Linda and precious wee Katie

    Take care

    Luv Shirley x

  • FormerMember
    FormerMember in reply to FormerMember

    Dear Sir Bob,

    Silly o clock now, You and the family are on my mind, Hope You Linda and sweet Katie are sleeping now, bet you are all worn out with tears, we are all feeling it with you, mad really cos we havent ever met, but 2/5 yrs of posting here you have given us all an insight of your life and your beautiful family so feel like we all know you, you should cry Sir Bob, as you said "what a shitter" - understament Id say, hope you wake up this morning with your fighting head on, if not ,I think I speak for all of your buddys on here, we are all here for you, Linda and Katie as you have been here for us.

    Massive (((((((((((((Hugs))))))))))))))))) Sir Bob, Lady Linda Katie xxxxxxxxx

  • FormerMember
    FormerMember in reply to FormerMember

    Tried to edit that post, dosnt read right this new ruddy site,but  know you get my drift and what Im trying to say

    xxxxxxxxxxxxxxxxx  

  • FormerMember
    FormerMember in reply to FormerMember

    Sweet caring Kate - I could find nothing wrong with your post - as always spoken from the heart xxx...........and YES! Bob we're all here for you, Linda, Kate and the rest of your family whenever you have need of a 'cyber-hug', someone to listen or offer 'tissues' to wipe your tears.  Your bravery, stoicism and humour have fortified many of us to gird up our loins and carry on fighting this 'insidious invader'..................Tears are allowed...... we all need that release for our emotions.......but I know that soon you will pull yourself up and straighten your shoulders to carry on for as long as you can...............

    My respect, love and a ((((((big hug))))))) for you all

    Dot xxxxxx

  • FormerMember
    FormerMember in reply to FormerMember

    dear Bob Linda and Kate.

    this is so wrong .....this shouldn't be happening ...i really don't understand WHY !

    love and hugs to you ...at this incredibly difficult time

    bob you are and continue to be an inspiration to everyone on the mac site..

    love mary xxxxx

  • FormerMember
    FormerMember in reply to FormerMember

    Hi Bob,

    Thinking of you all..

    xx

  • FormerMember
    FormerMember in reply to FormerMember

    Bob. I am deeply saddened by your latest news. You have fought so hard against this terrible disease. My husband was diagnosed with advanced kidney cancer with lung mets in June last year. He had been on sutent up until November, when treatment stopped for him to have surgery to remove his right kidney. The operation went well & all signs were positive that the sutent was working on his lungs. 13 days ago we were told that the cancer had spread to his brain & he is now halfway through whole brain radiotherapy treatment. The plan is for him to go back onto the sutent once this treatment is completed and the consulant has said that if he continues to respond well, a more targeted procedure could be carried out to his brain. He didn't go into details, but I had read your posting that very morning and knew what he was talking about. My heart goes out to you & your family for the very difficult decision you have to make & I hope that if & when the time comes, our family can be strong too. My love to you all.

  • FormerMember
    FormerMember in reply to FormerMember

    Bob and family - so many wise words have been said, I really cannot think of any to add to the support on here, please just know there is another group of people rooting for you here as well.

    This should not be happeneing and the word  'unfair' just doesn't even make the starting line......

    {{{{{{{{{{{{{{{{{{{{{{{{{{{{{{{{{{{{{    hugs   }}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}

    for all of you xxxxxxxxxxxxxxxxxxxxxxxxxx

  • Sir Bob, Lady Linda and Kate too, nothing I can say but send you my love and more (((((((((((((((((((((((((((((hugs))))))))))))))))))))))))))))))

    Moomy