This time last year my mum was ill, we then found out she had multi myeloma. She has done initial treatment a stem transplant and then was having a break. I had my mum back. The treatment and transplant was cruelling. Her levels have not reached 0 but she is well. However, she now has to go through the cycle of initial treatment again then into maintenance.
Seeing her go through that treatment once was traumatising and now to see it again I just feel so on edge and that I cannot support her fully. I am dreading it. I know it is not about me and feel the guilt for thinking like this but how do you cope seeing a loved one go through this,
Hi MultiMyelomadaughter I don’t normally post in this group but just happened to see your community name.
I am Mike and I help out around our various Blood Cancer groups. I don’t have Myeloma but for some context I was diagnosed way back in 1999 at 43 with a very rare type of Lymphoma then in late 2913 a second more rare type of Lymphoma appeared…. I have had a lot of treatment over the years including 2 Allo (donor) Stem Cell Transplants.
To widen your support platform you may want to consider joining and putting up the same post in our dedicated…..
……. support group as there are active members in the group (both patients and family) who have navigated the same journey as your daughter.
You may also fund the long running discussion below helpful…...
Life after a SCT - A Survivor's Guide
This discussion is in our dedicated Stem Cell Transplant support group.
This discussion is a collection of post SCT treatment experiences.
