My daughter has cancer

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I really don’t want to be here. I guess none of you do. I don’t want a reply or sympathy or empathy. I just want to write and vent. My brother in law died, my ex husband died, my current husband was diagnosed with life limiting disease and then my bloody dog died. Just when I was contemplating what was worse my 36 year old daughter who has 2 very small children was diagnosed with cancer. I don’t know if I’m allowed to swear here…. But WTF! I’m a nurse practitioner for 46 years so I just know too much. The fear is visceral. Who can I talk to? I know, my best friend, oh …. that’s my daughter!

 I can’t work out what is the worst thing about this. Is it watching my daughters fear. Is it watching her have brutal invasive surgery which will leave a scar that all can see. Is it worrying about my son in law and grandchildren. Is it listening to my lovely supportive kind friends and family who are trying their best but just say things that enrage me.Is it my employer who thinks I can just be at work through this although I’ve refused as I think I’m in no fit state to diagnose and treat patients. Is the fact that I think I’m actually losing my mind. Is the worry about phase 2 of treatment. Is it the people who tell me I have to be strong for my daughter FFS!!! Is it I wish it was me not her. Is it the deep down feeling that I must be a bad person to have been handed this.

No. I’ll tell you the worst thing. It’s the awful aching loneliness being the mother of that beautiful girl and only I can feel like this.

My love to you all out there and my sorrow for your loneliness xx

  • Oh … and for the record I’m coping with this with gin and popcorn. Against all sensible health advice. And I lied…. Please someone say something 

  • Just hi - sorry you’re here too

    My mother is the one ill and told me yesterday going to have an X-ray about spread after everything seeming relatively normal. No idea what after that. Both my parents know in the same way you do medically which must be horrid. 
    Sweet or salted popcorn or mix? 
    I need to get up and eat. Bed seems a safe place (don’t live with my parents.) 

    i Just  joined soI have the guidelines, probably means no swearing as offensive but not sure- 

    Offensive or abusive language, particularly that directed at individuals is unacceptable on the Community. Due to the nature of the site, it’s fine to use anatomical terms in the correct context in your comments, but you should avoid aggressive or excessive use of language others might find offensive. Please always be mindful of the way other members might interpret your comments.

  • What a shit time you've had ,I'd be hitting the booze too...I know when my sister had a brain tumour...she passed away six years ago...I got up to a bottle of whiskey a week  on a night to try to help me sleep ,when I started putting it into my morning coffee I thought he'll fire and didn't touch another drop.

    You're a nurse practitioner and even though that means you know too much it's also I think a great help be abuse you can advocate for you're daughter,ensure she gets the best treatment and fight her corner if she doesn't.

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  • God I'm sorry, I can't imagine the dread you must feel. Your daughter will be worried for her babies in the same way you're worried about yours. Look after yourselves as best you can Heart

  • Thank you. Mixed 

  • Thank for you for taking a minute and your kindness 

  • Thank you for your reply during your own grief. My condolences and thoughts to you 

  • I love your blog, At last some words I recognise. 

  • So my lovely daughter is home. Looking like she’s been bitten by a shark,… and yes I know in the grand scheme that is minor and not a problem. Her wound got infected and her nerve pain reduced her to a wreck, and let me tell you this girl is a hardcore warrior after 4 surgeries in 3 years for other problems. She phones the hospital “help” line three times and gets no help. Her GP says AE… no way. Some things i know….. the very junior doctors have just started in A:E in August,with all due respect a complex major neck dissection has only been in their text books. I was a theatre sister I know wound infection and I know complex post operative nerve pain.,….. oh and incidentally my sick husband has just desaturated and is now in his 6th hour sitting in his 999 ambulance outside an AE elsewhere!

    To cut a very long story short. Her consultant who had told us that he was totally in charge of her care and his team were there for her was on holiday and I guess his team didn’t understand that concept. So I took her to the hospital and placed her infront of them. I really don’t care about the way I was treated but I have alot of thoughts about her care. Thank god she was rescued by a wonderful clinical nurse specialist who started treatment for pain and infection

    Now the wound is leaking….. forget the help line…. Im doing her daily sterile dressings.

    Oh and by the way my husband is still in hospital in another city.

    Two things… the system is broken 

    and I’ve written this omitting all swear words believe me they are in my head

    Oh A third thing….. I can’t get my brain around my daughter has cancer!

  • My heart goes out to you. I really do understand. I'm sorry I haven't seen your post before but I don't come here so often now. My daughter is one year past 2.5 years of treatment for an aggressive cancer. 22 brutal chemo cycles, 3 surgeries and 15 rounds of radiotherapy. She still has side effects from chemo and life will never be the same again, but her one year post treatment scans show 'no cause for concern'. 

    My husband has been diagnosed with vascular dementia. I knew things were changing through the final year of daughter's treatment but didn't have the headspace to do anything about it.

    This is so hard and I really feel for you. As mums, we just want to protect our children from anything that will hurt them. But sometimes we just can't and that's so hard to accept.

    Very best wishes to your daughter for successful treatment.  Sending love and a massive hug. ((((( )))))