time up

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well husband got bio back end of treatment he went in for opahageages tumour but noone looked at shadow on bowel only 1 persom the sugeon said about it just before but put down to huge hernia went down and mass on bowel to far gone removed what they could of it and hernia left the tumour in tube so we got bio back and no more or less got told tarmail 6- to year more or less and now they putting stent in to help him eat the thing is he asking WHY BOTHER and more less given up they say we give drugs to slow it down ie more chemo which he said NO WHY I HAD 4 LOTS OF THAT FOR SHIT ALL   sorry but he angry hurt scared i know i on the hand tears all day no sleep  when i do drop off all i see is loneyness how i am to survive when he goes how hell do live with out him our son only 19 he just useless as he cannot see any life with out him he was the main bread winner we just retired well he had 1 year i on the other hand still got 4 years before i can so if he fights i cannot stay at home so one has to work we didn't get any allowance when he had chemo I MEAN NOUT so all he saying when he goes like asp it pay the gas bill etc as we not had money to pay it before he went in for this op as to talk to anyone i find it to hard because the word McMillian people is CANCER TO ME i know they seen it but i want know many are young nurses have their been through it with family i just to cross to even knowledge them when they come to house when he had chemo if he refuses help i will sending to hospice i watched last 8 years my mother and father die in one and my younger brother so i know what that's like  !!

sorry JUST NEEDED TO VENT OFF but all this how does one get sleep all going round your head heart breaking tears most of time when you think of it and telling everyone then already family breaking down due to that's our dad we had issues with our daughters and saddle 2 years not spoken to 1/k 8 years to number 2 they that's our dad !! family's are making it worse

how do people cope!!

  • Hi  

    I’m Steph from Macmillan’s Online Community team. I hope you’re finding the Community to be a comforting source of support. We see every day how helpful it can be to speak to others with a similar cancer experience and access peer support when you need it.

    I hope you don’t mind me responding here today to offer you some further support with the worries that you’ve shared.

    When you’re going through so many difficult emotions, it might feel difficult to reach out for help. I wanted to reassure you that Macmillan are here to support you in lots of different ways.

    I’d really encourage you to give our Support Line a call.  Our Support Line teams are available 7 days a week, 8am-8pm on freephone 0808 808 00 00email or live webchat.

    We can help with emotional, practical and financial support, depending on what you need. Here is a little bit more information about our Support Line teams:

    • Welfare rights advice- our welfare rights advisers can tell you about benefits and other financial support.
    • Energy advice- we have energy advisers who can help you reduce the costs of your heating and electricity.
    • Financial guidance- our financial guides are experts in helping to reduce the financial impact of cancer.
    • Cancer information nurse specialist- our experienced cancer nurses can talk you through information about diagnosis and treatment.
    • Work support service- our dedicated work support specialists help you to understand your rights at work.
    • Macmillan Grants- we can also give you information about Macmillan Grants, one-off payments to help people on low incomes who need support with the extra costs that living with cancer can bring.

    I hope this is all helpful and that you’re able to reach out for some additional support. Please do let us know if you have any questions – you can contact us by email at community@macmillan.org.uk

    I hope the Community helps to show you that you don’t have to go through anything alone.

    Kindest Regards,

    Steph
    Online Community Officer
  • Dont apologies for venting online - if it helps just do it  - get it all off your chest