Having a bad day

I'm in small room too bed OK but crazy amounts of sewing kit, haberdashery around and various bears looking at me....Mums sewing room...also squeaky floorboards and door. ..

All silent for now...

.hope all calm for you all too.

1am usually the witching hour here.

Jx

Jenny sorry youve made me laugh, actually, thankyou, when in my little room, under the bed are 1000 toilet rolls, the light is a gestapo torture weapon, all the books and toys from a plethera of dead friends, 6 bibles and a montage of my brothers children photos, (he isnt in contact) - my sewing kit for sewing her husbands care home labels ready, into his y fronts oh and all the power cables for bath aids. All for love. X

....and we're all up...well in bed but awake...dad needs drink mum anxious. .I feel sick 

Zzzzz

Happy bloody Christmas. ...grrr

Maisiemae I know you are scared and that's perfectly natural but please don't feel you are alone! We may not be physically there for you but here we are all with you 

Just wanted to say that x 

Mum and dad crying...mum on commode as filled one second one filled. 

Given hugs and immodium. .

I feel crap. 

Mum had changed underwear on own in the night.  Took her 25 minutes..

Heartbreaking.

She said she hates feeling trapped and doesn't know what's going to happen next..

Hugs to all

Maisiemae my room has the same light!!! Burns your eyeballs!

Dearest Jenny, this awful situation cant be sustained on your own. I just dont know how you are still breathing yourself (or seeing with burnt eyeballs!). Can they have respite for all if you as a couple? Temp in hospice/carehome? May not help you this minute but you will be ill yourself without more planned help. Not sure re their financial position but social services should provide 'continuous care' at home, we are now 3 nights with Marie and 3 nights continuous care through social services. I swear it wld be easier if we were all together then we could mood lighting in! Xxx

We took mum to the nursing home last night.  It was awful.  this is supposed to be the best one in our area.  I dread to think what the rest of them are like. 

Her room wasn't ready, they took ages making the bed up. there was stuff stored in the bathroom and down the side of the wardrobe, the paint is peeling, the carpet is sticky, the sheet was threadbare, the toilet didn't flush, there are only two carers on from 8.30pm to 8.30am.  They took ages to come when mum pushed the buzzer and when they did mum told them she needed to go to the toilet and they said that they had to put others to bed and then they would be back.  I explained that when mum needs to go she needs to go and he said again about coming back.  Eventually he got it that she couldn't wait and got the other carer and got her to the toilet. They then left her there and when me and my sisiter walked back down the corridor they had left the door open so you could see her sitting on the toilet.  We found the girl and told her and she said she hadn't left the door open but she had. She did apologise.  I ended up speaking to the nurse on duty and told her how unhappy we were and she apologised profusely and said it was just teething problems, etc. Me and my sister ended up getting mum off the toilet and back to bed. 

I can't bear it! I just wanted to scoop mum up and bring her home.  I went from being releived that she'd be safe to feeling even more worried about mum. 

This is so shit!  I hate it!

That's awful Elenium.  I hope it is just teething problems and it will improve for your Mum once they get to know her.

Mum was in a home for 5 days last Christmas as Dad was v bad and took all our efforts and her hip surgery had been done.  It was a bit chaotic but mum bossed them around. Her carpet smelled of wee...not her wee... but they were OK in the end...

I hope it improves. ...let us know.

Jx

Heartbreaking as you say, Bob sad yesterday can't understand why he is so weak and couldn't prepare the veg for Christmas Day, as he has always done.

I'm so sad too.

Bastard evil disease.

Hope things improve for you all, just don't understand why you can't get more help from community care.

X

Hi Elenium, as Jennie says likely to be teething problems.

Tr not to worry and expect when you go to see her next she's really comfortable as the staff get to know their patients.

Love Lesley x