Sorry but I'm having a bad day and I just need to let it out. Â I woke up feeling like I've had no sleep and really down. Â Mum's been bad this week - a lot of pain and, I think, sliding into depression - so I'm in overdrive on worrying about her. Â My sister is with her today so I don't need to go round to see mum although I probably will drop round later. Â I thought I would throw myself into cleaning the house so make myself busy and then I'd start to feel better. Â My fatal mistake was asking my 18 year old daughter to help. Â She had a major strop. Â I tried to keep calm as I realise that she is worrying about my mum too but it was hard. Â I tried to talk to her but she just got worse and worse so I gave up. Â Then my husband made sarcastic comments about it all - again he is worrying and his mum is also not well - so I am still trying to keep a lid on it. Â But I feel even worse now. Â I'm now sitting on the sofa in my pyjama's watching old episodes of Grey's Anatomy without the will to do anything else. Â I just keep crying and feel so very very sad.Â
On way to work again. Â Feeling crappy. Â Stomach feels a bit funny, not sure if it's nerves or something real. Â My daughter has had some fluey thing and she was sick on the first day. Â Oh please don't let me be ill. Â Round mum's tomorrow and if I'm ill you can just bet the rest of them won't step in and help!
I know what you mean about being in a cancer carer bubble. Â When I meet friends they always ask about mum so I say a bit then change the subject but constantly find myself back talking about it all.
The woman sitting next to me on the train has just moved. Â I think my typing has got on her nerves... or maybe she read my post and doesn't want to catch whatever I have. Â That'll teach her to be nosey. Â :-)
Jenny, hope the hospital visits go ok. Â Hope everyone else is alright.
Have a good day.
Hugs. X
Elenium
Oh Jenny - I know it's useless to you, but I'm sending you a massive hug.
Are hospice offering respite or just telling you that you should have it? Anything that can be done with the anti-sickness to see if an adjustment helps?
Thinking of you and hoping for a more settled afternoon for you.
Nicola. xx
Jenny we have the hospice come in and do respite for a few hours a couple of times a week. Could you ask them to do that? Even a few hours a week would really help you.
Sending you a big hug. X
Elenium
In resuss with mum has an unknown infection being admitted but waiting for bed....been here 4 hours got sis to care for dad. V low BP.Â
Jx
Ps carers doing an hour in morning at moment elenium. Hospice suggested all day care for three days in new year...when I say and they're free..I guess?
Jenny, ido hope her hospital stay can adjust things for a level which is better. Its horrible times but really, as they say, best place for mum with all the ?s happening. Dear Jenny, test for you is as important and respite isnt failure, its a rest. Xxx
Jenny, how's your mum now?Â
Definitely take them up on the respite care. You need a rest honey. As maisiemae says it's not failure.
Big hugs x
Elenium
Hi all. Hospital marathon. Back in bed now got back home at 11.45.
Mum got confused this morning and her temperature went to 35 then up to 39 they thought she had neutropaenic sepsis from chemo.. so I called ambulance.Â
In resus her BP crashed at the point they were admitting her to a ward..they were sending her to ICU but BP improved. ..but her bed on ward had gone so was there 7 hours. Â She has an infection they don't know where. Â She may go to intensive care if BP drops again.Â
She was chatty ..threw up  a few times. Wasn't eating.
I'm beyond tired. Will visit her tomorrow.
Hospice had asked her gp to phone us. Â He didn't. Â Their gp is SHIT.Â
Night all jx
Jenny, hope you got some sleep. No doubt yr dad will be super worried too. Of course we hope today brings a more settled status. We all know this journey is changeable but these changes can be gut churning. At least mum has plenty of help there and trust she got the bed she so deserves. Will watch out for news. X
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