Having a bad day

Elenium yes would've been nice they got the type of cancer correct! Glad plans are in hand for you and your Mum.

Think we're similarly placed re mum.  Marie Curie carers coming to help mum wash from tomorrow.   Upping the pain patches soon and oxycodone and paracetamol.   Got community nurse coming re bed sores not sure when. Also prescription re sores.  Hospital  bed is coming on Thursday mum refused this on Friday but said yes today due to awful weekend.   Sis cried all morning as been here all weekend. Also phrase end of life care used in passing by Maria curie assessor. ..made sis cry again.

They suggested stair lift too mum said no hope she says yes soon.

She has huge bruise on pelvis from fall.

I was asked how I am....told her...she said they may be able to help more later. 

She noted dad's cancer and dialysis too.

Jx

So tired this morning I can't think straight. My husband says I toss and turn all night, no wonder I feel like I don't sleep.

I was feeling a bit better yesterday after the meeting but today not so much.  Doctor has upped the dosage of mum's anti depressants, which will make her sleep more and then may up her morphine tablets too, which will also make her sleep more.  I'm at the point where I think that may be a good thing because if she's sleeping she won't be aware of the pain so much.  Hate it, hate it, hate it!

I hope your mum changes her mind soon about the stair lift, Jenny.

It's a shame they can't help you with how you're feeling now rather than later.  You have so much with your mum and dad.  I don't know how you do it. I find it hard enough with just my mum.

Sending everyone hugs and thinking of you Sue. X

Oh Elenium you must feel exhausted. ...I know I do.

Suspect I have arthritis now.  Feel generally not well tired ache bit fluey.

I can't be ill. 

Carers due today.

Today I want my own home

Hug

Jx

I am exhausted. Feeling a bit overwhelmed so currently hiding in the toilet at work. Everyone is lovely in my office but don't want to bore them with all this.

Jenny, perhaps you feel ill due to the stress. You know you can't afford to be ill whuch is stressing you more.

Sending you hugs. We both need them today. X

Apologies for any typos. Not got my glasses with me and can't really see what I'm doing.

elenium

how i wish i could hide in the toilet with you - today the world is too big for me, i feel very little and can't cope, our journeys seem to be on parallel lines!  mum is being sent home today from hospital and i can't be with her, tomorrow i can probably, i just want my sister and brother to have some time off work as well as me

many best wishes and don't be in there too long

x

No typos. ..mind you my eyes not good. 

Marie curie carer came. Mum washed dressed and downstairs via very capable lady told me where is everything then you go now we'll call you if necessary. 

Made dad tea in kitchen overcome with emotion at an hours help....

They're amazing.

Mum happier too as her babies getting help.

Sis came home from work as didn't sleep last night.

Elenium  work people can take it if you meltdown. ..they'll cope.

Hug.

Jx

I only spent 15 minutes hiding.  You can hide in the toilet with me anytime maisiemae. :-) 

I'm now not thinking about what my brothers and sister are or aren't doing.  I can't worry about them and keep letting myself get angry.  It solves nothing.  I know that I have done everything I can and you have too - we all have - and that's all that matters.  

Met my friend for lunch and feel much better now.  

The hospice have said they can come in for 3 hours a week so with that and the carers it'll be a bit eaiser.  Mum won't be happy to start with but I think she'll get used to it and it'll be nice for her to see different people too.

Glad you've got some help Jenny.  You certainly need it.

Hugs to all.  X

Elenium - you are v wise. Yr resolve seems greater that break from work was great for you. Indeed, like you, ive done everything in my power for mum. Shes on her way home from 2.5 weeks in hospital, im not convinced she wants to go home xx

Maisiemae hope all goes well for your Mum.  I imagine she's nervous about going home and you too.  

Keeping all crossed for you.

Hospital tomorrow for mum here. Transport ambulance drivers on strike for three days so we will find out tomorrow who takes us. It's been me til now but mum too wobbly  for my car. 

Hug. 

Jx

Hmm, not sure that I'm wise.  I just can't keep on being angry and upset with them all the time.  The only person it's affecting is me.  I was making myself ill over it and I can't afford to be ill.  I need to be with mum as much as possible.

I hope everything is OK when your mum comes home maisiemae.  As Jenny says, I'm sure you're both nervous about it.

If the ambulance drivers are on strike who stands in for them?  Are there volunteers?

The hospice can get someone round to mum's on Thursday so I can stop worrying now.  Mum's not very happy about it but what else can we do?  There are always going to be times when one of us can't get there for whatever reason and this really helps.

Anyway off to bed.  Hope everyone sleeps well tonight. X