Having a bad day

Mum insists no hospital bed but nearly fell out last night.

Checked Airedale they sound good but not for London.   Guess we'll find out next week who Wandsworth use.

Mums heel protectors didn't work so got to re think that.

Im having gin soon as sister in charge ...she's exhausted.  We know that feeling. 

Hug.

Jx

Airedale. Its a service which boroughs buy into. Its based elsewhere but they have centralised system - my friend commissioned it for her borough (london) 

Oh it might well be them then that we get.

Gin o clock...

How are you feeling Maisemae? 

Going out date night! Champagne then Cat Stevens gig - feel guilty though but mum phoned wishing me a lovely evening. We deserve it too dont we? X

Enjoy your gin Jenny and your date night maisiemae. 

Don"t feel guilty, just enjoy.

:-)

Your Mum will be happier knowing you are doing something you enjoy.

Jx

Just sat here with a cuppa feeling numb. When I saw him Saturday I knew I wouldn't see "him" again. I was going to leave about 6 so I could get home for a proper sleep. I told him I was leaving, & with what little strength he had left he squeezed my hand ever so slightly as if to say Don't go. I waited till half 6 and told him again. He didn't respond at all. That's when I knew he was ready to let go. I said I loved him, & knew he loved me. I also told him he could go & ride motorbikes with his son now. On Saturday afternoon when I went to get a hot meal in the restaurant ,it had been wraps, sandwiches & cereal since Wednesday, I noticed the gift shop had Christmas things so I bought a snowglobe, a cuddly penguin, a hanging ornament & a hanging red heart that looked like cranberries on wire. I put them on the bed. When I went back when he passed the nurses had laid the red heart next to him on his pillow. I thought that was such a touching lovely gesture. 

Today I start all the official stuff. 

I'm really sorry if I've upset you, but it's meant the world to me to have your support, as you will continue to have mine. 

I hope everyone got some rest & that you enjoyed Cat Stevens Maisiemae.

My best friend went to see Carol King Saturday

Many Hugs

Sue xxx

You haven't upset us we are on similar way with our loved ones.

Very touching about the heart.

Love.

Jx

Of course you haven't upset us.  Just glad we've been able to help in some small way.  We're still here for you when you need us.

Love and hugs.

I've been to see the consultant today.  Found out that actually mum has primary bladder cancer not bowel cancer.  It spread to her bowel and likely her uterus.  I know it doesn't make any difference but it would have been nice if they could have given us the correct information.

They've come up with a plan for further pain relief that will start today - I just hope it helps.  Mum has been bad over the weekend.  They've also got the ball rolling about carers coming in four times a day.  I should hopefully hear about that today or tomorrow.  Mum won't want them but it's for the best.  And they've ordered mum a commode.  Also something she won't want but I think she's going to need it soon.  Even if she just uses it in the night it would be better for her.  

She's worsened so much over the last few days. They couldn't give timescales, as everyone is different - and I understand that - but I just have this awful dread that it won't be much longer. But a very small part of me thinks that would be good for her because then she won't have anymore pain.

On my way to work now.  Hopefully I can forget about it all for a while.

Hugs to all of you.