Having a bad day

Hug Elenium.

Pictures of mum even a year ago are markedly different. 

I understand about your faith.  I am not a church goer.  I find lighting a candle when I'm on my weekend off is nice in a meditation kind of way.

Hate all this...

Mum coughing again.

Jx

Thanks Jenny.

When I got to mum's this morning she said that although she had slept better she feels terrible.  Said she was "all over the place" when she got up in the night. I'm guessing it's the anti depressant making her feel like that.  I told her that you can feel worse for a bit when taking them but it will get better.  I made her go back to bed to see if she can sleep a bit more. I know the tablets aren't an immediate fix but it just seems so unfair that she has to feel worse before they start working.

My sister posted a picture of all us on FB last night at my niece's wedding a few months ago. Mum looked pretty frail then, she looks even worse now.   

Is your mum back at chemo today, Jenny?  I'll be thinking of you both. I'm sending you both a big hug.

Dear Elenium

I am very sorry I bit you! You just took me by surprise.

I don't suppose you would like my mouse, although you would be very welcome to share it. I have hardly eaten it at all, there is plenty of fun left.

I am sending you a big prrrrrrrrrrrrr instead

THE CAT

Must've been scary for her being all over the place.

Mum in a lot of pain this morning.   I take her in at 4pm IF I can get her in the car.  Hoping the drugs work soon.

Today is to pick up chemo prescription they needed to see her mouth first.

It's tablet form.

Am exhausted as coughing woke me early enough to see Trump fiasco as it happened. 

Jx

She's a bit better now but keeps nodding off in the chair.  Just did her lunch but she didn't eat all of it.  She seems to eat a little less each day.

Hugs to you for this afternoon Jenny.

Sending love to my onliners. Hugs to all. Mum survived the op. V frail but alive and not ready to go anywhere. Scans confirm v widespread of cancer and the tumors are big. X

Sending love and hugs back to you maisiemae.  Glad your mum is still with you.

Hi Girls,

Maisiemae, I'm glad your Mum came through her op ok. 

Elenium, it's a real shame about your Mum not being able to have a stoma.

Right, the latest episode in the care package fiasco.

The Community Nursing team were SUPPOSED to come and do an assessment yesterday morning. Well, by 2.30  nothng, so I rang the number on Alan's care folder. The lady on the other end said she couldn't see anything on the system, but would find out & call me back. She called back about 4.30 to say there was nothing on the system but she would chase it & she would make sure the Community team would come today! At 9.30 this morning, knock on door. The Community Nursing team.  We had a chat before I woke Alan up. One of the nurses, Jenny, insisted that she'd put the appointment on the system herself!! In the end you don't know who to believe, or indeed whether to believe anything! 

After speaking with Alan we're going to be referred to an agency. The plan is, if it ever materialises, is someone to come in once a week to help Alan have a bath & any other hygiene needs. Plus 2 mornings a week, hours to be agreed, to stay with Alan so I can get out & do stuff. Both practical stuff & seeing friends.

Now all we have to do is wait. Haha! Is that a pig in the sky I see?? I have to cancel my therapy this week again! Sometimes we can do it on the phone, but at the moment we're dealing with stuff that needs face to face. 

Is it any wonder we get so exhausted?? 

I hope you all are having a slightly better day today.

Look for the speck of blue sky in your world x

Sue xx

At least something is happening, finally,  Fingers crossed that they don't take too long.  

Mum's in even more pain today.  I don't know what's going on.  

Our palliative care nurse was going to sort out about someone coming in twice a week when my brothers go home, so I don't have to come every night but not heard anything yet.  I think we need to get someone to come in some mornings too. Although mum's not happy about it.  I'm going to ring up to get a carers assessment tomorrow.  Can't do it today as round mum's.

Reading what you've said Sue, i wonder if we could get someone to help mum shower?  She really misses her shower.  She can do it but it takes it out of her.  She probably won't want that either but may be able to talk her into it.

It'll be good for you to get some time to do normal things.

His all. Exhausting 2.5 hour wait at hospital poor mum.

Read your posts about help at home with interest. 

Hospice called today with social services no. Told her had i carers assessment for me a year ago. Nothing happened. Dad and mum went in to hospital so all was cancelled then they lost report on them and social worker left....guess I'll ring anyway probably Friday. 

Consultant putting mum on half dose of everolimus chemo initially as her mouth ulcers on sutent were "worst she'd ever seen". Mum going to try ...we agreed if her mouth reacts this time she'll stop. Her pain killer is wrong so on paracetamol only from tomorrow.   She can't take codeine and morphine knocks her out entirely. 

Her utter weakness may be treatable if it's lack of phosphate. 

She can hardly get in and out of shower. Has to rest after her legs tremble a lot.

She hardly ate as there so long.

I booked ballet about 6 months ago with my friend. It's next Wednesday. ..they think they'll want me to pick up chemo that day.  Usually it's a 2 hour wait...grrr..only I can collect it!

Will try to persuade them to another day.

Love to you and your folks all.

(Dad tried to do drying of clothes mum has mini jumper)

Cat baleful as out all day....he never goes to his own house.

Jx