Having a bad day

Really sending love and condolences, relief for your mum but heartbreaking for those she has left behind. X

Hello Jenny,

I am so sorry to hear about your Mum, and can only add my sincerest condolences, along with the other lovely people on here.

Take care, Anneteresa

Hello yantibe

There are no words. Thinking of you and your son's. Stay strong.

Mum can't speak or swallow now. She's in pain because she can't take her tablets so they are giving her injections. She's quite agitated. She's not really here anymore. I've asked if she can have a syringe driver. Stand in nurse who was useless and didn't understand what I was talking about.

Elenium. This is unacceptable for yr mum. (And for you) A couple of thoughts. Call yr GP before they close and ask for immediate intervention as I think mum is at the home? If she is in hospital ask to speaknto PALS team and make a fuss. If in doubt call community nurses or dial 999 and tell then yr mother is in distress and you need help immediately. My mum got like this and they put more sedative in the driver. Im wondering if they have no spare drivers. Dear sweet Elenium this lack of care isnt making a tough situation less painful and pain SHOULD be handled correctly. Im cross for you. If you need my help i am in action mode. Or i will just sit with you here xxx

Thank you Maisiemae.  They now have the driver and asked me if I still want her to have it.  I said yes.  The nurse said that it won't be much longer.  That's not what she actually said but I can't remember what it was, but words to that effect.  Although I knew that anyway. I can't seem to cry anymore.  I expect I will start again.  Had to tell my girls and hold it together for them. So very very hard.

You will cry when you can. The fight is to make sure she is comfortable and you are with your dear sweet mum. Is anyone else with you? Good sister? Its a long lonely time and we are with you now and in the following days/weeks. Tell mum all those sweet funny things. Sing to her. Savour every moment through your fatigue. X

Thinking of you Elenium at this sad and difficult time, as maisiemae says we are with you

Jenny I am so sorry for your loss , here for you too 

MIL funeral on 15/2/17 . Very hard to cope with all the emotions at the moment as it has stirred up the still raw memory of Jill's passing , can't believe this is happening to me and my boys. Feel like we are cursed. Poppy the dog getting weaker by the day and the thought of her going too is awful 

Elenium....so close behind my Mum.

Unbearable I know....what my mum needed...

Syringe driver replaced on time

Sedation (wasn't really given early enough)

Buscopan. ..to dry up her chest secretions that caused distress...not sure whether your mum will need this...

I had to ask for the sedation and buscopan though as mum couldn't speak easily they asked if she was in pain she shook her head they left but she was distressed and v uncomfortable as fluid was in all her limbs...

Maisiemae is right...whisper sweet things

We did too and she said over and over she wanted to go...she seemed reassured when we said it would happen it would come...I tried to say her best friend would take her there. .

Said in calming tones. ..read her prayers I found and hospital chaplain came. ..mum said Amen.

Moistened her mouth moisturised her hands. Still she had distress and many other things....too much ..

Elenium it is the hardest thing I have ever done so I stand with you now.....you will be exhausted...you must eat and drink to be able to do it...time will be irrelevant. ...

All my love to keep you safe during these days...

Heartbroken.

Jennyxxx

Yantibee it's relentless. 

I hope you can all have some peace soon 

Jxxx