I don’t know if this is something anyone else has come across but when my brother has a visit from his hospice nurse, he always seems to be having a good day?
I don’t know if it’s adrenaline of the visit but I feel like they are only seeing him when he is sitting up, comfortable with his meds and lucid. So maybe aren’t seeing the real day to day picture that I am. After a visit I am dealing with pain, temperature spikes, confusion and anxiety but they aren’t witnessing any of that?
I’m feeding back to them but I am starting to feel mentally exhausted and stressed by the responsibility of it when they aren’t seeing it all. Does that make any sense?
