My husband is now on his 4th cancer. The first was a brain tumour in 2015, throat cancer leading to his voicebox being removed in 2016, colon cancer leading to a colostomy bag in 2018 and in 2025 new tumours found. He had a short run of chemo that was so strong it nearly killed him and he's been terrible since. Started in Nov and we literally missed xmas because of the terrible side effects. In Feb he got ill with a stoma infection in hospital 2 weeks, out for 4 days and back in hospital for 7 weeks with pneumonia. He almost didn't survive. We had no care plan to come out with and struggled. After 5 days he was back in our local hospital with more pneumonia symptoms, and out for 4 days and back in again with a gall bladder infection. He is exhausted and has sleep depravation, post hospital syndrome ( almost constantly asleep, jerky movements and drops things, confusion). I have found the travelling, visiting, being his advocate for doctors and nurses and now 24 hours caring draining. Although other services off practical help like shopping cleaning, someone to manage medication etc, I don't find I need that. What I do need is to be able to go out for a bit to get away, meet a friend for coffee or lunch, have a hair appointment etc and have someone be in the house with him so I am not worrying. Has anybody found a service that can do this for them. I am based in Salford.
