After suffering with shortness of breath and a stabbing pain in the shoulder blade for 8 months my mum was finally diagnosed with T4N3M1a Squamous cell lung cancer. The symptoms are changing so rapidly now that I don't know how to help. Within the last two weeks my mum has had 2 infections her 02 intake had dropped to 92%, and on Friday we heard she has pulmonary edema. Yet no-one has asked us to come in to relieve symptoms with the only advice being if it gets worse come to a&e. We've been told we're on the wait list for chemo but every day my mum gets worse.
Has anyone get any suggestions to help relieve the edema?
My other concern is we are out of the catchment for any hospice care options so receiving help in the long-term seems impossible!
Hi Em2023
I’m Steph and I’m part of the Community Team here at Macmillan. May I wish you another warm welcome to the Community, although I am sorry that circumstances have brought you here. I do hope you find the site a safe place of kindness and support.
I was concerned to spot your post and hear how unsupported you’re feeling with caring for your mum.
How are things now? it is important to highlight that if your mum develops any new, changing, or worsening symptoms to seek assessment and advice from your healthcare team or if unable to speak to them call your GP or 111.
If you’re still feeling worried after speaking to them, you may find it helpful to give our Support Line a call. Our Macmillan Information Nurse Specialists are here to offer support and help with your questions on 0800 808 00 00 seven days a week from 8am – 8pm.
Please know that you’re not alone. Macmillan are here to support you whenever you feel concerned.
Please do keep chatting here on the Community too.
