Feeling selfish

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Hi everyone,

I'm very new and realised I need something to help and guide through this bizarre predicament we find ourselves in - so here I am.

My partner of 13 years has very recently been diagnosed with stage 4 prostate cancer.

It's come as a total shock to all of us. He wasn't well since Christmas thinking he had a stomach infection, even the GP thought that what it was until he had horrendous reaction to the steroids they prescribed him. Anyway after a 12 night stay in hospital he came home this week and all of a sudden I can't seem to cope. I keep crying and feeling really anxious.

I live with my partner who has his 2 kids (21 & 17) who stay over with us 50% of the time and 50% with their mum who lives locally.

During his hospital stay, I had one evening at the start where the 21 year old stayed over with me at our house and we had a nice evening. The rest of the time, I only saw them when they visited their dad in hospital as they stayed at their mum's. Now he's home, they have come over to stay.

I feel really upset and feeling really selfish as I'm really worried about the future. His prognosis isn't great even though he seems OK at the moment and just gets very tired. 

What also is challenging is that he has told his all family he has 5 - 10 years life expectancy even though the consultant has said (still waiting for full test results to come back) that he is 9/10 on the Gleason Scale and said 6 months to 2 years is normal for someone in his position. He's told me to lets pretend that he has 5 - 10 years so I don't think he has accepted the situation.

We have worked together for a number of years - it's his small business, lived together for 12 years and all our hobbies etc are together. The house is rented in his name. 

So absolutely selfish as this sounds I'm really scared that I am going to loose him, loose the relationship with his kids, have no job/income and have no-where to live - all in one fell swoop.

I can't speak to him about my fears as I know from the conversations we've been having that he is ensuring his kids are financially sorted and this his main priority - which is totally understandable. He's given me lots of information/instructions regarding ensuring the kids are sorted and I would 100% carry out his wishes when the time comes, but I'm really scared of being all alone with no-one or no home/job.

Am I being selfish and need to pull myself together?

Sorry for the long post. Just need to "say" this out aloud. 

  • SeaSail

    Very sorry to read that its well spread unfortunately  yes the Minou70 is right financial and health LPAs - power of attorney. and if there is a joint property a "tenants in common" and new wills in place

    URGENT that stops the government putting a charge on the property   "tenants in common"  and trust, no a trust at this level is not expensive we had ALL the above done and filed for some £450.00 little cost to protect ourselves but all needs to be done not just the LPA's times four ie financial two health etc two LPA all cost us £400 in total plus filing fee £83 times four

    LPA's took at least 4/5 months    all other stuff very important only £450 separate specialists i found just about one month in place and filed.

    All The best 

    TB123    

  • I know they cannot say definitively how long someone has but I totally get what you are saying about needing a guideline or a rough idea. I know they dont like to make this prediction, but I honestly think it is so important to have an idea, like you say things need to be sorted out. There are enough case histories for them to make an educated guess. Sending hugs to you x

    • Thank you  for your support x
      I keep trying to search on the internet (I know maybe I shouldn’t) to look for predictions but that seems pretty vague too. 
      Sending hugs to you too x thank you 
  • I’m definitely going to bring this up to him this weekend. 
    it’s something we both need to discuss in depth - you are totally right. 

    As he’s still burying head in the sand a little about the diagnosis he thinks he will sort things out “soon”. In man’s speak - that’s not being proactive.  I need to push him to sort things for definite. 
    Maybe when I go with him for his first chemo on Monday I can bring it up in conversation with the nurse and she/he might point him in the right direction. 

    many thanks again for your guidance and support. 
    much appreciated TBH123

  • Thank you so much for your words of support and guidance Pete or Stan
    I have taken your advice and bought the book you recommended (and hidden it!)

    You are right - it is emotionally exhausting. 

    So sorry to hear about your wife. Really truly appreciate your advice from your experiences. 

    I will take your advice. Thank you.

    Sending big hugs x

  • SeaSail

    when you are ready subject to the rules here i can supply contact details of the legal folk i used as an ex tax accountant  all the best

    TB123

  • In recent weeks, chemo has given my husband a new lease of life - he’s gone from being in imminent danger of respiratory failure to off oxygen going for walks and managing chemo well.  6 weeks ago, we had a prognosis of 3 weeks.  Things can change very quickly. 
    I would also agree that discussions about wishes, end of life care and getting affairs in order is emotionally exhausting.  We have much of it in order now and my husband is fed up with MacMillan nurses asking him this every time they visit especially now he’s feeling better. A certain member of his family is the same.  He is not in denial but there is only so much head and heart space for it.  He needs a break and I do wish this relative wouldn’t go on at home annout his ‘symptom management and palliative care’ every time they visit. Sorry, just venting on your thread.

  • Minou1970

    Its a nuisance factor to involve any other person in ones affairs i do not even discuss my long term 20 years of cancer with anyone my wife is ex Royal Surrey specialist histologist  nurse and knows too much and she does not go on about it we just live with it and have got all affairs in order albeit i am now declared free of cancer all banks in joint name for years as on death the banks freeze that sole person account but not a joint tenants in common wills and all LPA's done     

    bless you all and hope for the best TBA123

  • Agreed.  When we were both at our lowest ebb, a dear friend took this relative aside and told them that this conversation, these decisions were between me and my husbands.  I will be eternally grateful to that friend - the relative  still tries, but we are more robust at the moment and able to manage them.  Who knew that managing relatives would be such a drain when you least need it! No need to go over continually once it’s settled.  Get it done and move on and make the most of living.

  • Hi Minou1970

    In 2003 i was diagnosed with prostate cancer and in 2004 after the brachytherapy (seed implantation)  i had a meeting with the private (BUPA) consultant who started pacing his room with the words it has  metastasized after that i went on holiday that year 6 times to Luxor hay i am still here 20 years later i did not sell my spare shoes but felt like it after that meeting  never looked back dont need to talk to anyone at 80 years i must be out of time   had colon cancer two years ago the cancer removed and now nil  so what next  just move on and forget it  been through every scan machine in the hospital so i feel relaxed and do not worry we have the very best consultants here in the South think positive and plan forward as you say make the most of living   all the best TB123