Mum now diagnosed with incurable cancer-how do I even process this?

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Hi guys

It's been a while since I've been on here, so I;ll give an update.

Mum was first diagnosed with high grade endometrial cancer back at the end of 2022. She had a hysterectomy and chemo/radiotherapy, with all the standard follow ups with oncology.

As we were told there were no signs at the time that the cancer had spread, we got to the 2 year post treatment scan thinking all would be ok...

...we went to the follow up appointment last week to be told the cancer had indeed spread to her liver and other lymph nodes, and is now incurable. Any treatment she has now (she's decided to opt for a course of immunotherapy and tablet treatment) will only prolong her life.

As her daughter (I do have an older sister but she lives a fair distance away) and I'll also be managing most of the caring responsibility, how the hell do I begin to process this? How the hell do I get my head around this?

It seems quite cruel really, as she came to her state retirement age while having treatment, so she of course retired from both her jobs without ever returning from sick leave (because of the cancer treatment). Her treatment finished in May 2023 so it feels like she's had barely any time to enjoy her retirement and now she's been told her cancer has not only returned, it's incurable.

I just can't get my head around it.

Please don't feel you have to respond to me, I just needed to write this down somewhere where people would understand.

  • Hi  

    My wife's cancer diagnosis was incurable from the get-go so never had the bit about thinking it might have been cured. However she had two lots of chemotherapy and the second one managed to make her cancer stable and it had been that way for over 10 years now.

    With some help we managed to get to the state of living with cancer, hope things work out well for your mum too.

    <<hugs>>

    Steve

    Community Champion Badge

  • Hi Steve 

    So sorry to hear about your wife. I'm so glad she's stable at the moment.

    My Mum has consented to have further treatment so hopefully that will give us more time. I think I've found it harder as I'm 34 and still live at home, having lived quite a sheltered life (I'm autistic and the usual can't afford to move out as a single person, etc).

    Mum seems to have taken the news quite well, I think she was resigned to it after she was told they'd found something on her 2 year scan.

    Thank you for your reply.

  • My partner has been told her cancer is incurable. It is like being hit by a sledgehammer I know.

    Fully understand how you feel, hence my user name.

    That is all you can do.

    Hope things can be as best as they possibly can and good wishes to you and your mum.

  • It totally is like being hit like a sledgehammer.

    I agree, we can only do the best we can.

    Thank you, same to you and your partner.

  • I’m so sorry to read your news. I’m going through something kind of similar except we didn’t know my mum has cancer until it had already spread from her ovaries to her liver, pancreas & lymph nodes. It’s all just so shocking and heartbreaking and hard to process. We only found out 2 weeks ago when she was taken to hospital for a UTI that wasn’t clearing up, they found the cancer & now it’s unlikely they’re going to allowed her home, multi discipline team are meeting tomorrow so we’ll know more then but the doctor has said she’s unlikely to go home & unlikely there will be anything they can do for her except make her comfortable. It’s horrific

  • Oh gosh I'm so very sorry to read your news to, I'm sending you so much love. It's absolutely heartbreaking and so difficult to process.

    I'm sending you a massive hug right now. I hope the MDT meeting goes as well as it can tomorrow. Let me know how it goes.

    Sending lots of love to your Mum as well.

  • I’m hoping your Mum is in reasonable heath. Please tell your Mum to stay positive. Please believe and tell your mum to give it her best shot. Love to you both x

  • I am so sorry about your situation, its heart breaking.  Do you have a Maggie Centre near as they offer support for anyone effected by Cancer.  

  • Hey thanks for your response and all the advice. Mum is in fairly reasonable health and has no symptoms currently of the recurring cancer. 

    She was coming out with positive stuff yesterday and I said to her 'keep those positive thoughts coming'. 

    I will tell her all of this,  thank you again for all the information it's so helpful!

    Love to you Heart️

  • Thank you Heart️ not what we wanted or expected to hear at all.

    I'll look them up again as I've heard of them, thank you for sharing.

    Love to you Heart️