Walking on egg shells

Yes all the time

Every second of every day.  

oh yes! every day, Daisy_21!

But in this group you can vent those frustrations and reach out to folk who "get it". 

You don't mention who you are treading around on these eggshells. For me its my husband who has a terminal diagnosis. While they are going through their own tough journey, they don't always recognise that we are going through a parallel journey and when they lash out, they don't mean it deep down. 

Hang in there. Stay strong

sending you a big virtual hug

Wee Me xx

My fiance lashes out a couple of times a week over little things it has effected my 15 yo son. How do you cope with these as it's not only me but my son

Everything I say or do is wrong,x

I so know that feeling.   

I’m just sat here thinking, would it have been different if I’d been allowed into the hospital(s) for appointments etc.   So I would have had a better understanding of what this would be like?   Yes they sent leaflets and videos, but I was asked to do things that I had no experience or training to do.  In some cases even stuff the district nurses wouldn’t do!  And don’t get me started on the admin side of hospitals.  Once inside everything is fine.  Ring with a question or a problem and jeez.   

sorry rant over x 

Yes feel this way all the time 

1. Yes. Sometimes I worry that this is how I’ll remember him

Amanda, it may seem like that and initially yes you do.  But the good memories overtake the bad and those are the ones that will stay with you. 
My dad was so ill for a very long time, but now we all (Mum, sister and me) just seem to remember the good times.

Now 16 years on, here I am again….   

Stay strong, take care xx 

Hi Wee Me

It;s my husband.  Newly diagnosed and incurable.  Thank you for your encouraging words.

xx