I have just joined. My Father in law (76ys old) has had a sudden diagnosis of advanced metastatic bowel cancer on 26.09.2020 He had a ileostomy (spelling) and has a stoma bag. He was in hospital until 9.10.2020 them came home on palliative care. Hospital bed, Carers 3x day & community nurses visiting. We were unable to get anyone to night sit as they decided that he was a suspect covid due to him having a cough (he has COPD).
He has been very difficult to handle, he denys any pain but is unsettled, complains of itching, is very rude to his wife, has hallucinations, is struggling with the catheter, the stoma bag is constantly leaking. Mother in law was doing days i was sitting in at nights. Last night he was trying to get out of bed and had his feet over the safety rails (which were up) and swore at me and threatened to hit me when I said he couldn't come out.
Mother in law had a discussion with the community nurses yesterday saying that we were struggling and Father in law agreed to go to a nursing home, he went last night.
I feel that I have failed. He will now die away from is wife and we won't be allowed to visit due to covid restrictions. I really feel like I have let everyone down.
Hi and a warm though sad, welcome to Carers. Please don't blame yourself; you have let no-one down. He sounds like a very difficult person, although cancer can bring out the dark side of anyone. His being sent to a nursing home is not on you. You said yourself that your mother-in-law was the one, rightly, to discuss things with the community nurses and, believe me, they would not have taken him so quickly had it not been essential. He's in the right place where he can be cared for safely and may well respond much more patiently with nurses than he did at home. Please be assured that you have no responsibility for his condition, physically or mentally. Not being able to visit is hard, but it's that same around the country and, much as it hurts, it is not something you have any control over. You worry that he 'will die away from his wife', but it's very unlikely, when the time does come, that he will be aware and he will have nurses with him. You have been very caring and loving; now it's time to pick up the pieces and look after you.
Sending love and hugs,
LoobyLou
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