Hello - getting really worried about my Mum's memory. She was diagnosed a little while ago with secondary breast cancer with an aggressive orbital tumor as well as mets on her hip, under her breast and behind her breast bone. two weeks ago she started a course of Capecitabine chemo. She was called on 3 different occasions to explain what and how to take the tablets along with several other tablets alongside (I was present for one of these calls) but she is frequently forgetting what she is supposed to be doing.
I spent a whole day going through everything with her, including the chemo diary to complete with her side effects, etc but none of it goes in. She is fiercely independent and gets really angry with me if I try to explain things to her, and pretends she knows when she doesn't. I write things down for her but she forgets to look. The hospital have told her that stress is probably causing her memory loss, understandable, but why are they expecting her to remember all this?! I have requested to be told things but they have said they will tell my Mum and ask HER to then call me to tell me..?! She has no clue how to get a repeat prescription of this chemo or when she is supposed to have her blood tests and scans - we were told these had to be every 3 weeks.
I feel a little in the dark about this and because I'm an hour away from her, (she lives alone) I can't always be there for every phone call she gets with instructions. At what point should I express my concerns to the oncology team (and risk getting into trouble with my Mum)? I'm worried something important will be forgotten or worse that she will take a tablet at the wrong time etc.
Has anyone experienced this?
