Hi there, I have only previously responded to other posts but feel like writing this now.
My husband stopped his treatment earlier in the year so he could have an op on his stoma. Also, he quite hated the treatment although accepted it because in the CT at the end of 2019 we found all the tumours had shrunk.
He was recovering from the op while our house purchase was going through. I feel bad for doing this at the same time, but he was unhappy at the other house, and this house was for sale and I had enough inheritance money for it.
So we have moved to our house, but just before the move his bowel started discharging whenever he exerts himself, so as a result I am still moving things from the old house, and he is sleeping in our lounge as cannot do the stairs very well.
his brother is coming over to help reassemble our bed and I am hoping he can fit the handrail I bought as well.
And then in all of this he says he’d like a break somewhere and we could just go away for a week. I have mixed memories of other times we’ve been away since his diagnosis, like coming home early.
I am just working out my thoughts...
I think it comes down to, he would always drive to holidays before and now he’s not up to that. So I will have to choose somewhere I can drive to.
Also, having to consider his requirements, we can’t just take off to a random b&b like we used to. He says what he’d like to do as if it’s just like it used to be. It’s up to me to make it work somehow, or tell him why not
Tomorrow (or later today) we’re going back to the old house with his brother. Hopefully get things from the house including his car. I think if we’re not able to do that, we’ll know we can’t go on holiday.
maybe I can just take him to the seaside for a night and that would be enough?
Hi and a warm welcome to posting. I completely understand your quandary. Some of our members keep an 'emergency bag' with everything needed in it so a quick getaway for a short break can be made. It's extra hard for you now having to do all the driving as well. I'm the same as you and do not drive so far as my husband. Could you try one night away to see how things go, a test run? Then you would have a better idea of how difficult it might be, or even have your mind put at ease if they are not so bad. I hope you manage to get a break for yourself too.
Love and hugs, Linda x
LoobyLou
If you find dust in my house, write your name in it. When the signatures overlap I'll get the polish.
Click here to see how to add details to your profile. It helps everyone to see a little about you
I’m not sure if it’s the right thing to reply to this thread or start a new one. It’s apparent he was just having hopeful ideas of escape, “if only” we could go on holiday, rather than actually wanting me to book one then and there.
I’m also aware we’re privileged as ok for money and just bought our house and so I know we aren’t suffering as much as the people who have financial hardship along with cancer, and I apologise for making being able to buy a house sound like a thing to moan about. I am just crap sometimes because of the things we are going through.
My husband has stopped eating properly and at least he enjoys the Complan I’ve been buying. I think he knows we’re not going on any more holidays. He suggested I go up north to see my brother and family for a few days and he would go into respite care. It’s appealing in one way but on the other hand if he is that ill I don’t want to be that far from him, I am thinking he could go somewhere nearby and I just sort things out in the house for a couple of days.
I have read an idea that everything we do is led by love or fear, and we should choose love. I feel like I’m led by both at the same time at the moment, I guess that’s being a carer!
Hi , You have no need to apologise. A carer's lot is a tough one. I understand you wanting to be near him, if he's in respite care you will get a break anyway and you might find that's enough. Not sure I agree with 'everything we do is led by love or fear'. A lot of what I do is a result of logical thought and I think we need to be careful of letting others label us. Life just isn't that black and white and if there's one thing being a carer has taught me, it's that people who are not carers have no idea what we go through, but they're pretty good at judging us.
Hugs, LoobyLou
LoobyLou
If you find dust in my house, write your name in it. When the signatures overlap I'll get the polish.
Click here to see how to add details to your profile. It helps everyone to see a little about you
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2025 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007