Hi guys - Need some advice/support.
I'm 24 years old and my parents are divorced. 2 years ago my single dad was diagnosed with stage 4 prostate cancer - he's been managing the cancer successfully with hormone therapies but recently his PSA has been doubling and his consultant has now confirmed that the therapy is no longer working. His next option is chemo. My dad has severe mental health issues aside from the cancer (long term manic depression and anxiety, he had a hard upbringing and his mother attempted suicide etc - very troubled). Due to this and the circumstances I've wound up in - I've been fairly parentrified growing up and am now having real mental health problems myself.
He and my brother have no relationship and all other family lives far away (Scotland & USA).For a long time everything has fallen on my shoulders in terms of being his emotional support - he treats and talks to me more like a spouse than his daughter and with the cancer diagnosis this has really exacerbated things. His physical health at the moment is sound enough to allow him to continue day to day life at a slower pace. He is able to look after himself but doesn't due to his mental health. I now live and work in London (moved in 2 months ago) and my dad lives back in the countryside - most weekends I still spend a day with him to basically pick him off the floor as he's often in a dark place. I've definitely adopted a mentality of just putting on the armour and going over to sort out this man who can't cope and in a total panic. It's very very very hard. Supporting him emotionally for as long as I can remember has slowly started to run me into the ground and is effecting my life massively as all my energy, emotions and free time is preoccupied by him. My relationships with friends & boyfriend is suffering. I either feel totally numb or in a total panic.
He does not know whether chemo is something he wants to do. But today, he made it very clear that if he goes ahead with it he expects he will need me to move back home and in with him to look after him physically and emotionally. He expects that my work can simply 'pause' my employment for a year or so if I just ask them... I know that with or without chemo, he will need proper care as he gets sicker. At the moment I am terrified that this will become my job because there is no one else to do it or share the load with, and regardless of my job/career, I am terrified that I cannot cope with the emotional strain. I'm not trained to give palliative care - the whole thing is just totally overwhelming. I feel immense guilt refusing this sole responsibility of becoming his carer and I love him dearly/what to be there for him, but I also feel huge resentment that it's all my job. Should I be expected to put my life on hold to become my dad's carer - would this even be sensible given both of our emotional states? Are there any other options available to me or is this just it now for me for the next year or so? He can't afford counselling or physical care to help himself - I can't even afford my London rent let alone anything more serious... I'm not in a position to stop working to look after him.
I know I sound selfish - I just don't know what to do or who to turn to for help. Sorry for the essay... thanks for any thoughts or advice, I really really appreciate it.
Hi and a very warm welcome to Carers Only. No, I don't think you sound selfish but you'd be surprised how many members feel the same as you. I empathise with your situation, having had both my parents with mental health illness and it's a heck of a job looking after one who's seriously ill. I would suggest you contact his specialist nurse or GP and ask about palliative care (I don't think too many people pay for private care); click here for information. Providing palliative care for your dad would, as you say, be incredibly stressful for you and if you become ill you wouldn't be able to look after him so it really is important to find palliative care a.s.ap. through local resources. I would also suggest you contact his GP and ask for him to be referred to the local hospice, they can provide care in his own home and perhaps later in the hospice. Parents are just as good as children at pushing guilt buttons even if it's done unwittingly, so it might be a good idea to call the helpline on 0808 808 0000 for a chat with an expert if you feel pressured or worried, they're open 8am-8pm every day and are very understanding.
Having a son who rented in London for years I sympathise with the rent problem, they're sky high. You've got a lot on your plate and you're clearly very caring and loving, but that doesn't mean having to give up your life. Take a deep breath and pick up the phone and please let me know how you get on. I'll be thinking of you.
Love and hugs,
LoobyLou
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