I’m teaching out to anyone going through the same as me? My husband has been told his myeloma is aggressive and after 3 years he is no longer responding to treatments, tumours everywhere of various sizes and he’s just on radiotherapy for the reversible ones and chemo/steroids for pain management etc. He’s gone down hill fast and the radiotherapy last session today has wiped him out, he’s so fatigued, off his food, I can see a marked change in just a few weeks now.
But is it the radiotherapy and chemo and steroids making him feel/look so poorly now or the myeloma?
I’m watching and waiting to see if this is now a true decline or he will bounce back a bit and we will have many months more together.
consultant said a month ago he has months not years.
I don’t know what I’m asking here I’m just typing and looking for support.
mainly I’m brave and smile, cry and feel it all, we are so so happy and in love still it’s just so sad.
I am trying to find the positives every day and we do but I’m also just waiting and watching him as the days go by in isolation. Having anyone else on here to connect with who knows what this feels like will help I think in the months to come.
(we have the palliative care team in place - just now physical contacts all phone etc because of covid.) Makes it really tough to have zero freedom to enjoy our last moments together. Thank you x
