It’s a incredibly hard time for everyone. Being in isolation when you are a sole carer and bearing all the responsibility of the needs of someone with months to live is a challenge.
When you are told you have a year to live, most of us have a bucket list. Some will want to ensure their partner is going to be okay after. Some will want to ensure they spend quality time with family and friends.
Carers are often forgotten. I am trying to ensure I am doing all the practical stuff, but also trying to deal with my partners condition. Inside I am a wreck. He is unable to be left, he is unable to understand he has to stay home- keeps saying. Let’s do this or that! I am growing tired of saying- everything is closed- we aren’t allowed to go to beach- no we can’t sell house now- no- no- no. He just does not understand and gets annoyed with me.
I feel so alone and he has no emotion - I am constantly comforting to him and feel guilty for even expecting a man with a terminal brain cancer to still care - but this lockdown makes escape for me for a hour impossible-
So sorry for your loss .Its a dreadful time so much sadness for so many people .You did all you could and you can take comfort from that .Look after yourself now and lots of luck to you x
Granny Sue
Dear , I am so sorry for your loss.
Sending much love,
LoobyLou
If you find dust in my house, write your name in it. When the signatures overlap I'll get the polish.
Click here to see how to add details to your profile. It helps everyone to see a little about you
Ireally can't put into words X I'm so sorry X X for your loss
Dear
I'm so sorry to read of your loss and my sincere condolences are with you.
6½ weeks is hardly enough time to prepare yourself for this and with this current situation not being able to spend the last previous minutes with a loved one is the hardest part, time that is needed to tell each other that we will be okay and to wish the departing partner a safe onward journey.
I see that you finish off your post with a good bye I hope that you are just saying your farewells to the member of this group and not the the Mac family completely.
I note that you have already joined our Bereaved spouses and partners forum group and I hope that you will become active there, the group is very supportive towards each other and is good place to get to know others who, are in the same place as you are in, totally understand what you are going through and the emotions you are feeling and will respond to you in a warm manner without all the usual platitudes that you will hear from others who have no experience.
Be brave and take each day as it comes with unfortunately the ups and downs that they bring.
Ian
CC
Hi LH66,
my husband also has GMB4, diagnosed just before Christmas. It sounds as if we may be at a similar stage of treatment? He had a craniotomy in January, followed by 6 weeks of radiotherapy and chemotherapy. The tiredness caused by the radiotherapy has gradually decreased,but his mental and physical energy are much lower than before he was ill, and his short term memory is affected. He is due to resume chemotherapy next week.
The hardest thing is waking up in the morning. That is when he feels most desolate, and while I accept that he is angry, frightened and depressed, it takes it’s toll, and I feel drained by the whole situation. The lockdown, of course,just makes things so much worse for everyone, especially as we cannot see our children, who live in London.
I hope things continue as well as possible for as long as pos for you and your husband.
Best wishes x
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2025 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007