Lock down when you are dying

FormerMember
FormerMember
  • 27 replies
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It’s a incredibly hard time for everyone. Being in isolation when you are a sole carer and bearing all the responsibility of the needs of someone with months to live is a challenge.

When you are told you have a year to live, most of us have a bucket list. Some will want to ensure their partner is going to be okay after. Some will want to ensure they spend quality time with family and friends. 

Carers are often forgotten. I am trying to ensure I am doing all the practical stuff, but also trying to deal with my partners condition. Inside I am a wreck.  He is unable to be left, he is unable to understand he has to stay home- keeps saying. Let’s do this or that!  I am growing tired of saying- everything is closed- we aren’t allowed to go to beach- no we can’t sell house now- no- no- no. He just does not understand and gets annoyed with me.

I feel so alone and he has no emotion - I am constantly comforting to him and feel guilty for even expecting a man with a terminal brain cancer to still care - but this lockdown makes escape for me for a hour impossible-  

  • FormerMember
    FormerMember in reply to FormerMember

    Totally get you I keep waiting for someone to pinch me so I will wake up from this nightmare Sob

  • FormerMember
    FormerMember in reply to FormerMember

    Thankyou to queen latifa and needing friends. Now i know I am not the only one going through this. My husband and I have been part of each other's lives for 52 years and I am watching him slowly disappear before my very eyes. 

  • FormerMember
    FormerMember in reply to FormerMember

    I agree about these lying down! I do exercises to allay sciatica and my physio told me to lie on my front for 15 minutes with a heat pack on my lower back then do the exercises prescribed.  That is by far and away my favourite part of the schedule!! We didn't get chance to make a plan as such but are trying to live each day as close to normally as possible which means 2 office chairs and a card table in a small bedroom doubling as a dining room. Very snug!! Please keep safe out there for yourself and your loved one. X

  • FormerMember
    FormerMember in reply to FormerMember

    It's me again. Things have deteriorated quickly over the Easter weekend. He is now having many more panic attacks, breathless episodes and pain breakthroughs. His breathing generally has gone to pot and speaking is now very tiring. No appetite or strength. He has had midazolam and morphine injections but neither seem to work for very long. The plan now is hospice (if a bed is available) or hospital bed and commode in the lounge for home nursing. It's a good job the kids visited yesterday.

  • FormerMember
    FormerMember in reply to FormerMember

    very sorry to hear smaggie,  cry when you have to, smile when you can.  keep strong sweetheart x 

  • Thinking of you.

    Love Lisa x

  • FormerMember
    FormerMember in reply to FormerMember

    Big hugxxx

  • FormerMember
    FormerMember in reply to FormerMember

    You never know how strong you are until being strong  is the only choice you have ( bob Marley)X X X 

  • FormerMember
    FormerMember in reply to FormerMember

    Thank you to everyone who has posted in response to me. Sadly the love and bane of my life passed away yesterday in the  hospice. He had been there just 23 hours. I was unable to be with him as it all happened so quickly. 6½ weeks after we first became aware of symptoms. Please keep your strength up for your loved ones and yourselves and my thoughts are with you all. Goodbye. 

  • FormerMember
    FormerMember in reply to FormerMember

    Dear You

    my thoughts and hugs are with you. You say Goodbye, but maybe stay in touch with us lot! We are in the same boat. The journey at different stages. But our journey does not stop. I for one hope you feel comfortable to still chat with us.