Been such a hard journey. My mum is now in her final stages. She is bed ridden and has been in a sleep like coma for over thirty hours. She looks peaceful and the pain and restless spells finally seem to be under control.
she is still at home with myself, my brother and dad looking after her. We have one nurse visit a day to change her syringe driver. And carers from the council that come twice a day. They are not palliative carers and look frightened when they turn up. Hospic at home and other more suitable care has no capacity to help at the moment.
When the carers turn up we sometimes turn them away. Now she is in this coma like state should we get them to give her a bed bath or will it be too traumatic. Really need some advice but feel a bit lost as to what to do for the best.
