What to do

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I don’t know how much longer I can watch my beloved hubby struggle as he is doing. I’ve just moved him into the conservatory for a beer and he’s crying with pain. We met with the palliative doctor yesterday to discuss him going into the hospice but he was having a very unusual break from pain. It lasted for a couple of hours till we were home after that appointment, his infusion and a discussion with The haematologist about our next appt. As soon as we were home he went downhill fast and he’s been in agony since and has needed his Oromorph again.
Last week we were on and off with the hospice, we had a succession of nurses, doctors, specialists, social care etc etc etc in and out of the house and on and off the phone till I thought my head would explode with all the details and instructions.
I feel guilty for saying I can’t go on when he is struggling so much and of course I will go on but what do I do to get through this so I can help him more.
Im so tired.
Sorry to moan I’m a mess just now.

June

LoobyLou49 over 5 years ago

Hi Will6, I'm so sorry to hear how bad things are June. Isn't it so typical? Fine during an appointment, then downhill, it seems to happen so often and I wonder if (with my husband) the adrenaline of the appointment might be what provides the temporary relief. Whatever the cause, of course you're struggling; anyone would with what you're going through and please do feel free to moan away. Do you have carers to give you some time so you can catch up on sleep or just get out for a while? It would probably be a good idea to call the hospice again and explain what happened. Push until you get the help you need. It sounds like a couple of weeks in the hospice would be a much needed break for you. Don't feel guilty, you're under tremendous strain and, if you haven't already, I'd phone your GP to let him/her know how much you're going through. It's important for people to know how hard it is for you too.

Love and hugs,

LoobyLou
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Will6 over 5 years ago in reply to LoobyLou49

Thank you for your reply LoobyLou49. I rang the hospice for advice and followed their advice to ring 111 for a GP to check hubby over to make sure nothing else was going on. Between 111, the out of hours doctor and the hospice they formulated a plan for us to follow until tomorrow when hopefully a bed will be available. Everyone has been so kind and helpful. The out of hours GP assured hubby that the proposed radiotherapy for pain relief will also be a good move. We both feel much calmer tonight.
It was good to have this place to come and have a little moan so again thank you Looby for taking the time to help.

June x

LoobyLou49 over 5 years ago in reply to Will6

Hi Will6, Thank you for letting us know June, it's always good to hear when things work out as well as they can. I am so relieved for you.

Always here to listen,

LoobyLou
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