Those with loved ones just diagnosed or waiting for an appointment, Check This Out

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So what do you do, who do you turn to, when you're in that stage of early horrors; the terror of diagnosis or possible diagnosis? For me, Day One was that moment of 'I've been having problems'. I stood over him and made him book an appointment to see the GP. When the doctor said 'it could be cancer', I needed someone to talk to straight away but most posts were about those with loved ones in much later stages so I held back and went into meltdown.

Are there any members whose loved ones are in the earlier stages of cancer, needing to ask questions, look for comforting words or to find someone in a similar situation? If so, please feel free to post a question or comment here and see if we can build a thread and continue it for those who need to talk/ask a question, but might feel a little hesitant. The more who join the conversation, the longer we can keep it going to help those with loved ones just diagnosed or waiting for an appointment, or just need help to get started. What was your Day One?

Love and hugs to All,

  • Everyone here understands how you feel.and no matter how much you have endured as  a couple it stills overwhelms you at times .The people who post on here are amazing and reading the posts gives you the courage to carry on . Just wanted to let you know Im thinking of you lots of hugs xx

    Granny Sue

  • Good Hubby. Thinking of you and wife today wishing you good news. Carole x

    One day at a time . 

  • FormerMember
    FormerMember in reply to zumbafan

    Thank you to you all!

    We were supposed to be seeing my wife's consultant that originally saw her on the initial breast cancer diagnosis 4.5 years ago along with her MacMillan Nurse so we were planning a day out somewhere lovely and peaceful on Sunday, but on Saturday night I received a phone call from a surgeon at a different hospital asking if I could take my wife in straight away because they had been sent her scans and the Neuro-Surgeons had decided that she needed to be operated on asap.

    I got her to hospital late a night and the surgeon met us and told us that they were going to remove the two at the rear of her head and then after a few days they will attempt to remove the one in the front.

    She is in theatre as I type this.

    The scan shows no spread apart from one suspicious lymph node.

    That's it.

    I have been looking at everything and trying to find why this cancer started and I am powerless to understand why.

    I know that cancer loves acidity and sugar and if these are high in the body then it thrives so I have been looking at Turmeric , CBD oils.

    I hope for the best for her , she is such a selfless , kind person who only ever thinks about others.

    xxx Good Hubby

  • Hi

     I send all my very best wishes for a successful op and hope all goes well with the second one too. 

    This evil disease picks on anyone; the sweetest people are hit with it. When my niece passed there was standing room only at the crematorium, she was so loved by everyone.

    Thinking of you,

    LoobyLou
    If you find dust in my house, write your name in it. When the signatures overlap I'll get the polish. 

    Click here to see how to add details to your profile. It helps everyone to see a little about you

  • FormerMember
    FormerMember in reply to FormerMember

    Hi Goodhubby...

    How are you doing, and how has today gone with your lovely wife?

    Good news I think...it hasn't spread!!!!

    Stay strong,I feel good news may be just around the corner for you.

    We haven't long since returned from chemo today,my partner is upstairs as I write,this is my outlet,not a great day for us.

    I also ask WHY? My partner is such a caring person and we have shed a few tears together today.

    Stay strong Goodhubby.

    Lots of love to you both...xxx

  • So sorry for all your troubles . The thing is there is no rhyme or reason to secondaries and they seem to come out of left field .Brain tumours are really scary and hardest to come to terms with .Bill has had two brain mets now and we are waiting for scans this week to see if the latest treatment has worked . He is quite good considering and we have almost learnt to live with it .Its not brilliant by any means and he is very different to who he was 3 yrs ago.when the primary cancer was diagnosed. But I know it could be worse and probably will be at some point but I cant do  anything about that . The only thing we can do is give as much love and support to our loved ones .Its hard they dont always want us and some times reject us but we still keep enduring it because thats what we do . I hope your wifes surgery goes well and she recovers well .Just wanted to let you know people do make it through brain surgery and do have a life after .All the very best and you take care of yourself xx

    Granny Sue

  • FormerMember
    FormerMember in reply to Granny Sue

    Dear Granny Sue

    She was operated on Monday which took four hours and they managed to get the nasty ones out of the back of her head. I was told they were close to cutting off her fluid circulation. She is in for a while now and when she stabilises they are planning on operating at the front.

    I feel satisfied that she is where she is, the hospital nurses and surgeons are unbelievable.

    I am visiting daily whilst keeping the house in order and getting shopping and sorting my son's out. Getting help also from family and friends.

    I've gone from devastated to angry and now I am in a get to work mode. 

    We still have a long rough journey ahead and this is yet another battle in her long war against C.

    I won't call it what it is because it doesn't deserve the mention.

    Love you all.

    Goodhubby 

  • FormerMember
    FormerMember in reply to FormerMember

    Monto 15 

    Thank you and we are both in the same boat.

    I went to visit my wife today after the first op, she is totally in a sleepy state.  She complained of pain 8/10 scale so they have been administering pain killers which knock her out but let her rest.

    I sat in silence with her because that is what she managed to whisper to me to just sit with her and say nothing, she smiles at me from time to time but I think she is dreaming.

    The pain must be unimaginable.

    The two surgeons who operated came in and told me that the first op was successful and the MRI was clear for that particular tumour so after she has rested the next battle for her is the other one at the front.

    I feel humble with the surgeons because they are on such a different level to me, so very intelligent and I thank god for our NHS.

    She has asked for no more visitors today and to be left in piece but her mum and dad are desperate to see her.

  • FormerMember
    FormerMember in reply to FormerMember

    Hi Goodhubby,

    Oh thankyou so much for your reply,I know I don't know you and your lovely dear wife,But you have been in my thoughts.

    Isn't life tough..

    My partner and I were awake until 2am crying silent tears,scan day today,just dread the results.

    I want to stay positive, but its so tough.

    Your wife's Mum and Dad must be out of their minds,but their daughter having such an amazing husband must bring some comfort.

    Lots of love and hugs to you all.

    Xx

  • FormerMember
    FormerMember in reply to FormerMember

    Big hug to you both as well.

    I have never meant the words I write as much as I mean them now.

    I have questioned god a lot throughout this wondering if it is because of my sin or something that he punishes us this way.

    We are members of the worst club we can possibly imagine.

    I feel guilty about eating and enjoying anything while she is in hospital , I don't want to do anything.

    I have been to see her but she made it clear that she wanted no visitors and I think you probably know as well as I do that when you love each other so much, you don't need words. Just looking at each other and being with each other is enough.

    I gave her the respect she deserves and left to come back home and I will go sometime tomorrow when she has tested. 

    I know that feeling of being in bed at night and waiting to see the specialist in the morning for results. 

    I hope your result come back good or better than expected.

    My prayers are with you and I will pray for you this evening.

    God bless you both 

    Goodhubby.