Brain Tumour/ Cancer

Hi Ava Rose 

Welcome to our community, I hope you find it both informative and supportive.

While I am not in your position at the moment there have been some times in our journey, over 10 years now with my wife's cancer and some times have been more challenging.

What really helped me was the first time I reached out for help, walked in to my local Maggies and basically sobbed my heart out. They helped me realise that the only thing that could give easily at the time was my work and with the help of my GP I got to take a break there.

Later I did a living with less stress course and that helped me focus more on the here and now rather than the future i could not control. The conscious breathing exercises were good too for when life decides to throw us yet another curve ball. 

Have you got any support from social services? If you look at Getting a care needs assessment you should be able to find what you need to get you both the support that can help ensure you are there when needed. 

<<hugs>>

Steve

Hello Steve

I think there is a maggies 40 minute drive away from me, I find myself coming upstairs to use the PC while he is sleeping down stairs.  Helps me   just relax a bit more.  I will get in touch with my local hospice I think.  I keep asking myself will I cope when he can't get out of bed and I cant escape for an hour to the shop.  I will look on the council site see what there is to offer 

Thank you for the reply 

Hello. Have you been referred to a palliative care team and a hospice? They will help with symptom control, provide equipment and carers when you need them and give end of life care when things get to that point. They will also support you as well as tour husband. 

Our local team were incredible, they helped me keep my husband at home were he wanted to be. They made his last few weeks bearable and treated him so kindly.

Hello

Yes he is on palliative care now and under the hospice but wants to remain at home as long as possible.  Im not sure how much more I can take it is so stressful and hard being his carer.  Im just exhausted by the end of the day no energy but then I have to get up during the night  its just so hard.