Palliative care only

Hi SpiritintheSky 

I was lucky to have a really good GP who was very supportive of me to ensure I would be the best I could in supporting my wife, Janice has Leiomyosarcoma so a very different type of cancer to your husband and we have been living with cancer now for over 10 years. 

Of course you would be welcome to ring the help line here too if it helps.

<<hugs>>

Steve

Hi, so sorry to hear what you are going through. 

My wife passed away over the weekend. She had small cell lung cancer that had spread to her lymph nodes and then into her brain. She was on palliative care and we had a local hospice. If you have any concerns at all please ring your hospice and tell them. They are absolutely wonderful people and will do all they can to help both you and your husband. They specialise in palliative care and did wonders with my Mrs. Please don't struggle. Call them. That's what they are there for. They can advise on all sorts and will listen to your concerns. They really understand that you are going through this too. We found our local hospice a godsend.

Good luck and take care x

So sorry to hear about your wife, my husband also passed away this weekend.  We had hospice at home and they were amazing.  We were able to care for Bryan at home because of the level of support we had . He also had small cell lung cancer and it had spread to his brain and liver.  At the end he was peaceful and me and our older kids were with him just how he wanted it.  I hope you get the support and help you need  take care x

So sorry for your loss. We also had hospice at home. They really are fantastic people. Liane passed at home with me by her side holding her hand. Also peacefully in her sleep. That was her wishes. Please accept my sincere condolences. I wish you and your family all the best going forward x 

Sorry no help but wanted to send a hug! We are in exactly the same position, just been referred to the hospice team and GP has also been in touch. My issue is that since starting on steroids for the brain tumours, my husband seems so well-it  is really hard to believe that he only has weeks left. How do you all manage to live with the death sentence? We are trying to do nice things every day while we can but I feel really stressed and worried the whole time. 

Hi TCLK, my heart goes out to you both. The simple answer is, I really don't know. I just did. You will too, just try to enjoy the time you have together the best you can. That's all you can do. My wife was very pragmatic about it from the very beginning. Her main concern was how I would cope looking after her and after she passed. I think I just ran on autopilot. You do what you have to do.

Good luck and best wishes to you both.

Sending hugs x

So sorry for your loss. Thoughts and prayers are with you. God bless. x

I don't know how we managed, ever day I would get up and think I just can't do it, but I did. We tried to do as much as Bryan was able to do which got less and less each day . Now I have the memories of them, not all were easy and I wanted to scream at the world how unfair it was.  I am glad I did it now even though it hurts at the moment.  Bryan last day was special and unplanned my son played all his favourite tunes and we sat with him remembering happy times laughs and fun we had. We didn't know that was our last day with him but it somehow has made it easier for us. I couldn't think past each day and at the end of every day I was tried but glad I had done it then dreading the next.  Don't be hard on your self and take care  xx