Awake and up all night

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Are you having trouble sleeping?

Sleep problems may be caused by how you’re feeling emotionally, or as part of the side effects for cancer treatment. If you find it hard to have a good sleep, you’re not alone. The Online Community is here to support you 24/7. 

“Getting a cancer diagnosis is extremely stressful, and that brings a whole load of emotions, and lack of sleep certainly does not help. I think many of us have periods of insomnia. I experienced a long period of not sleeping. I could go off to sleep quite quickly, but after an hour I would find myself wide awake again, and would spend the rest of the night getting frustrated because I couldn't sleep."
Community member, ‘Pancreatic cancer’ group

This discussion thread is for members who:

  • Have trouble sleeping and looking for somewhere to talk
  • Would like some company and support each other during the night
  • Share some things you do that helps you get to sleep

Be a part of the supportive Community in this discussion thread.

  • Yes because we had really posive data from specialist but a nurse gave her own very negative opinions causing me to be awake every night

  • Good evening Dingg, and a very warm welcome to our group.

    It's probably best to ignore what the nurse said, just take notice of your specialist's words and go with those.

    When my OH was in hospital waiting for his surgery, a nurse did a very similar thing, telling him his surgery was extremely dangerous and could kill him! He couldn't speak but wrote down what she'd said for me, and I was livid. We knew the risks but didn't need her input, so it's hardly surprising you're having sleep problems now with that nurse's thoughtlessness.

    Keep focused on your specialist's positive outlook and not any doommongering - it's the best way forward sweetheart xxx

  • Thank you so much for that, one Professor said he felt very positive about it as it had come on so fast it seemed gerd related though my husband will need surgery whatever the biopsy says. The doc said if it is cancer it will be easy hopefully to treat as hubby had scans not long ago totally clear there hadn't been much time to have difficult to treat cancer. Nurse was very odd.

    I'm more on edge as my husband has heart issues and will probably need open heart surgery but hopefully not for 18 months. 

    Thanks for your kind reply it helps x

  • No problem at all Dingg, and we're all here for each other.

    I don't know what your husband's diagnosis is, but Gerd sometimes relates to the oesophagus and there is a group here specific to that. If a community champion provides the link, maybe joining that forum too could give some helpful information.

    It does sound positive for your husband though, and no doubt the doctors will do everything to get him well, including his heart issues. Don't ever lose hope and definitely avoid Dr Google for information - stick with the doctors who've got hubby under their care, as they'll know what's best for him.

    Drop in here whenever you like though, as we're all good at listening and giving support should you have a wobble. Sending you both hugs xxx

  • Here's the link:

    Oesophageal cancer forum

    Derek.

    Made in 1956. Tested to destruction.

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    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

  • Good morning Dingg

    Sorry you're not sleeping well. I didn't have the issue you've got but I can imagine the nurse's comments being unhelpful. 

    H

  • Hello. 
    I haven’t even started it yet, as I got another one from my work. 
    I hope you are all enjoying the lovely sunshine Sunny️ I have just had a CT Scan earlier before my Radiotherapy starts. xx

  • Good luck with everything Kez Hugging and I hope it all goes well sweetheart xxx

    I've eaten one egg, well OH had some but he's not as greedy as me, but enjoy yours when you eventually crack them open.

    Take in the sunshine when you get the opportunity, and relax too. Sending you warmest hugs xxx

  • Good luck Kez. Let us know how it all goes. 

    Julie xx

  • The sun is beautiful. Just home from a coffee with a friend. Now waiting for a catch up with oncology consultant to review all is okay. Then next treatment on saturday. Hope your CT scan is all well. Xx

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