Awake and up all night

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Are you having trouble sleeping?

Sleep problems may be caused by how you’re feeling emotionally, or as part of the side effects for cancer treatment. If you find it hard to have a good sleep, you’re not alone. The Online Community is here to support you 24/7. 

“Getting a cancer diagnosis is extremely stressful, and that brings a whole load of emotions, and lack of sleep certainly does not help. I think many of us have periods of insomnia. I experienced a long period of not sleeping. I could go off to sleep quite quickly, but after an hour I would find myself wide awake again, and would spend the rest of the night getting frustrated because I couldn't sleep."
Community member, ‘Pancreatic cancer’ group

This discussion thread is for members who:

  • Have trouble sleeping and looking for somewhere to talk
  • Would like some company and support each other during the night
  • Share some things you do that helps you get to sleep

Be a part of the supportive Community in this discussion thread.

  • Don't leave the group Adz. We've all travelled to dark places with this stuff. Even if you don't feel like talking some days, at least you can let off some steam. It's good to talk. All my love to you dear man.

  • My doctors can't do anything iv been looking around for some help but nothing yet i now that' kidney cancer is only a small cancer but there is a lot of people wers of than me the depression is bad and all the infection 16 infections since last July and then i lost my twin sister because of her cancer 3 weeks then she passed away iv had a lot of issues with my health iv been with them for 26 years the thing about it is thay only disapliary for my attendance and not the cancer but i was off work due to the cancer so the 2 of them should go together in my mind and thay new all about my health issues but they sill disapled me not right 

  • I've only just joined and I see there are some very caring loving people here.

  • Good evening Adz. 

    I am sorry to hear you are really struggling with what is happening. I am guessing the last couple of years have also been a struggle for you too. It is a really difficult time and we can all relate to the anxious and anxiety feeling, the worry and at times those feelings of isolation too. 

    I agree with the others about staying and chatting to us about things you feel comfortable saying. Sometimes just knowing there are others around in the background can make huge difference.

    I am wondering if you are getting any other support from family or friends? Also have you spoke to your GP about how your feelings, they can really help in the early stages. Having any type of cancer impacts everyone and the feelings and thoughts you may have are all normal stages in the process. Its okay to be angry, upset, want to scream and shout or times where you just want to be alone and quiet. 

    I would really recommend speaking to our helpline tomorrow they are open from 8am and is a free service. Its all confidential and nothing is shared unless there is need to for your safety. They really helped me when I hit a wall and thought all was lost. 

    Please let me know if there is anything else we can do to support you. 

    Take care, 

    Jamie 

    Community Champion Badge

    Helpline number 0808 808 00 00 

    7 Days a week. 8am to 8pm 

  • Milkey, as far as I'm aware a cancer diagnosis is classed as a disability, so your employers could be in the wrong on this one. As for all the other traumas you've suffered of late, your GP could sign you off work with a sick note. I don't see how you're supposed to put shifts in when you're obviously in the wrong frame of mind.

    R️eally try to get an appointment first thing tomorrow love, as you need help now to get you through this truly awful period of your life. Don't be fobbed off - insist you see a doctor, or even call your hospital. No cancer is insignificant and everyone who's succumbed to it should be seen, or heard, without question.

    Sending you strength and hugs xxx

  • Hi Mickey, 

    Sorry to read work are being unsupportive. I nkt sure if your are aware but having cancer and even if its treated. We are protected by law under the equilaty and diversity act. We are classed as disabled and an employer must be supportive and make reasonable adjustments to help support you to keep you in work. I have included a link here 

    https://www.macmillan.org.uk/cancer-information-and-support/impacts-of-cancer/work-and-cancer/reasonable-adjustments 

    https://www.macmillan.org.uk/cancer-information-and-support/impacts-of-cancer/work-and-cancer 

    This will give you some guidance on what work should do also depression can be classed as long term illness too so might be best to speak with your GP. Also if your bus company has a occupational health you can ask to be referred to them. 

    Also give our helpline a ring and they have an option where you can speak to someone about work related issues to. 

    Hope this helps,

    Jamie

    Community Champion Badge

    Helpline number 0808 808 00 00 

    7 Days a week. 8am to 8pm 

  • You are welcome to come and join us in the Kidney cancer group, but no pressure and you can still use this group too.

    You can see in my profile I have this cancer too

    I have included the link here. 

    Kidney cancer forum 

    All the best, 

    Jamie 

    Community Champion Badge

    Helpline number 0808 808 00 00 

    7 Days a week. 8am to 8pm 

  • Thanks so much the last 4 years i have not spoken to everyone about my illness to eny help line so thanks to everyone who text me back thank you and it's a good night from me 

  • We are here to help. So do let me know if you need anything else and give the helpline a call tomorrow. We are all in this together. 

    Sleep well Sleeping 

    Community Champion Badge

    Helpline number 0808 808 00 00 

    7 Days a week. 8am to 8pm