Awake and up all night

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Are you having trouble sleeping?

Sleep problems may be caused by how you’re feeling emotionally, or as part of the side effects for cancer treatment. If you find it hard to have a good sleep, you’re not alone. The Online Community is here to support you 24/7. 

“Getting a cancer diagnosis is extremely stressful, and that brings a whole load of emotions, and lack of sleep certainly does not help. I think many of us have periods of insomnia. I experienced a long period of not sleeping. I could go off to sleep quite quickly, but after an hour I would find myself wide awake again, and would spend the rest of the night getting frustrated because I couldn't sleep."
Community member, ‘Pancreatic cancer’ group

This discussion thread is for members who:

  • Have trouble sleeping and looking for somewhere to talk
  • Would like some company and support each other during the night
  • Share some things you do that helps you get to sleep

Be a part of the supportive Community in this discussion thread.

  • This is the first time using this forum, I find I’m struggling even after I was given the all clear January. I find that I’m absolutely exhausted to the point I feel sick, but I struggle to have a solid night sleep. My eyes literally just open and I’m wide awake like tonight. This tiredness is ruining my life, I have no energy for any additional activity after work I’m finding I’m having breathing problems! I feel older than my time and I’m 43 years old. I’ve been ok up until a month ago and now my mood is all over the place I just feel sad all the time !

  • It is 0500. While I was very tired and starting to fall asleep watching TV in the early evening, once I tried going to bed i woke uo, and I have been wide awake all night. 

    This usually haplens day one of chemo, and it is day one, so I probably shouldn't worry....

    Ah well

  • Sounds familiar Jake. I've only have a couple of treatments so far but the steroids keep me up. I just watch Miss Marple on Netflix and listen to detective stories on Audible.  That helps and the ln I sleep when I can.  Third treatment today so no doubt will be up tonight!

    Julie xx

  • Good morning Star Star and a very warm welcome to our group.

    Firstly, brilliant news on getting the all clear, but I'm well aware that doesn't help feeling depressed and exhausted after everything you've been through - I'm my OH's carer and I witness this on a daily basis. However, he took ill health retirement last year, so you have the added stress of being at work.

    Have you spoken to your CNS or doctor, as it sounds like it's all hit you now, after the event, and the panicky breathing and low moods are signs you need further help my love. You could set the ball rolling by speaking to your line manager at work, as they're duty bound to put strategies in place for employees after a cancer diagnosis.

    I understand the waking up after a couple of hours and being unable to get back off - a major pain in the derrière! But don't despair, or suffer in silence, as there are steps you can take to get yourself back on track if you reach out for help. It's not a weakness to do this - it's crucial for your health and peace of mind sweetheart.

    Sending you hugs and hope xxx

  • Good morning Jake, and a warm welcome to you.

    I see our Julie has already told you about your shared issues on chemo days, and how they seriously hinder getting a sound night's sleep.

    I'm sure Macmillan has a blog on how to combat this, and a community champion will be able to provide the link.

    Good luck with your treatment today fella, and keep posting here for some light relief and extra tips on how to beat the dreaded sleep demon. Sending you hugs xxx

  • Morning Julie Blush 

    Good advice to Jake, as you're both in the same wobbly boat! I discovered a series on Netflix that I'm going to give a go tonight - I'm hoping it won't be good and will bore me off to sleep! I live in hope.

    Your chemo treatments seem to be whipping round so quickly! I hope you see that as a positive thing, and good luck with today's sweetheart. We've got to go to Wakefield this morning for OH fitting with a portable ECG device. The fun never stops!

    Big hugs sweetie xxx

  • We're living the life Gill! Living the life!! Joy

  • The absolute dream hon. Who needs palm strewn white beaches when we have this? I can't wait to climb into the taxi for the Wakefield traipse, and then the hour-long return by bus. Fandabidozi. If I didn't joke about it, I'd weep! 

    Never mind though, we'll count our blessings, methinks. Keep fighting the good fight my lovely xxx

  • Good morning Star

    Well done on the all clear. One Macmillan nurse I spoke to told me that some cancer patients get 'hit' with a feeling of 'what the hell just happened' after their treatment ends and this can bring you down. Maybe give the helpline a call and see if they have any suggestions.

    Would it be worth speaking to your GP?

    I hope you can get it sorted.

  • Good morning Jake

    Sorry that you're having to go through chemo treatment. I assume you are taking steroids? Speak to your chemo team, they may be able to help with the lack of sleep, if not maybe a call to your GP?

    I hope you sort it out.