Awake and up all night

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Are you having trouble sleeping?

Sleep problems may be caused by how you’re feeling emotionally, or as part of the side effects for cancer treatment. If you find it hard to have a good sleep, you’re not alone. The Online Community is here to support you 24/7. 

“Getting a cancer diagnosis is extremely stressful, and that brings a whole load of emotions, and lack of sleep certainly does not help. I think many of us have periods of insomnia. I experienced a long period of not sleeping. I could go off to sleep quite quickly, but after an hour I would find myself wide awake again, and would spend the rest of the night getting frustrated because I couldn't sleep."
Community member, ‘Pancreatic cancer’ group

This discussion thread is for members who:

  • Have trouble sleeping and looking for somewhere to talk
  • Would like some company and support each other during the night
  • Share some things you do that helps you get to sleep

Be a part of the supportive Community in this discussion thread.

  • I think this might be cause for a wee celebration tonight or over the weekend.

    We've had a little drinkie this evening Grin

  • Totally brilliant news Helen, and I'm absolutely made up for you lass! Get the vino out and enjoy! Big, big hugs sweetheart xxx Wine glass

  • Seriously fed up. Dad is 91and has dementia Mum is 88 deaf as a post and obstinate.  Difficult day.

    I'm allergic to every dressing going. Had mastectomy then emergency surgery from whatever the technical name for infection/dead tissue is. 

    I've had a vac pump and now back on dressings .. oh they say let's try this ..Great more blistering and pain

    Sorry don't normally whinge but any advice? 

    In agony again ..rah !!

  • Hello Dilly, and welcome aboard my lovely.

    So sorry for the late reply but I was a bit busy earlier. Aw you've got a lot on your plate right now, but although I can't offer any medical advice, I will ask if you've been prescribed pain meds and do they give you any kind of relief?

    Do you have any help or support with your parents, as feeling so rough yourself you'll certainly need some kind of respite? I noticed you've joined the Breast cancer forum, so posting there as well could maybe generate responses from those who may have gone through similar.

    Wishing you all the best sweetheart and please call in here anytime, even if you just want to vent as we'll listen. Big hugs xxx

  • Brilliant news! Xx

  • Hello Lisalouise, and welcome sweetheart.

    I'm assuming it's yourself who's the patient and your partner is your carer? If I've got that right then you could both do with some quality sleep. Jamie, our community champion, was having similar issues a few weeks ago, but saw his GP and explained some help with sleeping would be beneficial, so that's one option. If you'd rather not have meds, helpful posters have provided links or suggestions for sleep, so that's another. However, if you can't sleep due to anxiety, and it is because of a medical condition/diagnosis, you could always tell your team and see how they could help.

    Sending my best wishes and big hugs hon xxx

  • Thank you Gill ,yes it is me that is the patient 

    it is anxiety and the constant thoughts in my head that stop me from sleeping 

    My fear is I start taking meds I will not be able to stop so I would like to persevere , finding it hard though .

  • Hi again Lisalouise, and I get you on the meds as I'm the same. I think it could have been my late mam that put me off - she took them like Smarties and practically rattled! They didn't seem to do her any harm though, as she lived to the grand age of 94 and was also a breast cancer survivor. Everyone's different though.

    I'm my OH's carer, but it's not him with the sleeping problems - it's me! Now while he's sleeping like a baby, I'm usually still wide awake around 3 am and the whole insomnia lark kicked off with anxiety since his cancer diagnosis. It's become such a constant that it's now part of my life, but I don't want you to end up like this.

    Have you considered trying any of the sleep podcasts? They're pretty good and maybe your OH and yourself could listen together, hopefully sending you both to the land of nod. The best result would be you'd both get a good night, feel more refreshed during the day and then less anxious at evening time. It's worth a try and maybe start tonight.

    My final option is to read my ramblings - in the past my OH has often reached a catatonic state as I never know when to shut up! Sending you good luck and hugs sweetie xxx

  • Haha , first time I have laughed in a couple of days reading your comment re your ramblings , bless you , you sound lovely 

    sleep podcast , that’s a great idea , thank you, I think I will try that x