Awake and up all night

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Are you having trouble sleeping?

Sleep problems may be caused by how you’re feeling emotionally, or as part of the side effects for cancer treatment. If you find it hard to have a good sleep, you’re not alone. The Online Community is here to support you 24/7. 

“Getting a cancer diagnosis is extremely stressful, and that brings a whole load of emotions, and lack of sleep certainly does not help. I think many of us have periods of insomnia. I experienced a long period of not sleeping. I could go off to sleep quite quickly, but after an hour I would find myself wide awake again, and would spend the rest of the night getting frustrated because I couldn't sleep."
Community member, ‘Pancreatic cancer’ group

This discussion thread is for members who:

  • Have trouble sleeping and looking for somewhere to talk
  • Would like some company and support each other during the night
  • Share some things you do that helps you get to sleep

Be a part of the supportive Community in this discussion thread.

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  • Good afternoon all 

    I've been missing in action for a couple of days. We're away in the motorhome again but parent-sitting (Alan's parents who are both mid 90's). We travelled to Derby yesterday and treated ourselves to a lovely meal out last night. We continued up to Liverpool this morning. We'll be here until 28th Feb. It's incredibly boring being here as Mum & Dad don't get out these days so have nothing really to talk about so I've brought some cross stitch with me to do. 

    I can't help with advice for anxiety as it's not something I tend to experience, even when told I have cancer. I went into practical mode and decided that I was going to do everything to beat it rather than let it beat me. We're all different and react to situations differently. The only times I got a little down was when my wound was taking so long to heal and it was holding up my radiotherapy treatment, and when I couldn't go to Remy's (grandson) 1st birthday party as I'd had chemo 4 days before so couldn't be around a room full of little snot monsters. 

  • Hi Helen Wave I won't tell you to enjoy yourself at Alan's parent's, but will say how kind you are. It's a good job you've taken your cross stitching to do, and maybe another meal out will go down well.

    It's wild out here right now, and with Liverpool being only 70 odd miles to the west of us, you might be getting some of the same. Keep warm and cosy in the motorhome hon xxx

  • Hi, I'm back again. I slept quite well last night but been on a roller coaster of anxiety today. Got that odd sensation running across my head & don't know if it's to do with my brain tumour or just my hyper awareness of knowing there's something there. I did speak to my specialist nurse today so it's been noted down. But I find it hard because their support is only available 9-4 Mon-Fri (not surprisingly, as they need time off from work too). I did also speak to someone on the Macmillan helpline today, which certainly helped at the time. Like many, nighttime is probably the hardest, especially when like me you live alone. I have spoken to friends today and they are very supportive and have arranged to see one of the tomorrow. Feeling that this diagnosis has already robbed me of all the confidence I've had for years, of living alone. I had found some good YouTube guided meditation on a link somewhere on the Macmillan website so will have to give them another go. But would be nice to hear from anyone else having trouble getting off to sleep tonight.

  • Hi Homebird, and obviously I'm awake - again! Lol. I slept for absolutely ages last night so that's why I'm not tired now.

    Anyway lovely, maybe those angsty feelings are back because it's the weekend and we all know that means less folk available to call on for medical assistance. But saying that, you've done so well with those you've spoken to already and it's terrific your friends are rallying round. I wonder if any of them would fancy a sleepover this weekend? Just a thought as you'd have some company and know someone else was there during the night.

    The meditation thingy sounds good and if you let me know what to look for, I could give it a bash too. Don't feel alone sweetie as I'll keep you company for a while if you like xxx

  • Former Member
    Former Member in reply to Gill H
    [deleted]
  • Thank you. You're probably right. I was feeling relaxed & okish about 2hrs ago. But I become more aware of the sensation in my head when I lie down so that doesn't help when I get to bed. Maybe just need to  sit up a bit in bed first. So annoying as before I was aware there was anything wrong I never had trouble sleeping. I'll see if I can copy link to meditations to this page - they're aimed at promoting calm and positivity prior to treatment.