Awake and up all night

Thank you all for listening and for your support. I have prescription sleeping tablets (zopiclone) - they’ve never not worked before last night. 

I don’t think there’s any chance to seeing anyone before Monday. The appointment is with my sarcoma specialist and he has clinics in various different hospitals in the region. Monday is his Oxford day. The scan results will presumably show whether it’s something for his team, or for my breast cancer team. Either way, I can’t have any more RT so that won’t be a treatment option

There are all sorts of parallels with my situation now and in 1977, the time of the original sarcoma diagnosis: too complicated to go into, but I literally cannot think about anything else at the moment.

My father had a sarcoma too - I can’t remember the exact trajectory of his illness but in the end he had to have a forequarter amputation (of his leg). He died soon after the operation. 

Good Morning courtlandcats 

I have just been reading through this thread and I can fully understand your feelings here. I am aware you are going through a difficult time and I would advise you to give our Support Line a call on 0808 808 00 00 (8am to 8pm 7 days a week).

They are a cracking set of people and should be able to help with the worry and anxiety.

Best wishes - Brian.

We are all happy to listen. RT might not be the right treatment but they are otjer options which I am sure will be dicusses on Monday. 

Once Monday comes you will have all the answers you are seeking. Its all a mind field of different scenarios and we play these over and over. Night is always the worse.  Zopiclone is a good medication but once the mind takes over it difficult even with medications. So I hope you give the helpline a ring and have a chat with someone. It can be very supportive to discuss things through. 

It sounds like your Consultant is very good and works at diffrent places, gives me the confidence they will have the expert skills you require at this time. So I am hopikg this do to for you. 

1977 was few moons ago and look where you are 2026 and lived all these wonderful years. I know it might not feel like it, but your body did resond to treatment back then and there was limited research and  milestones achieved then. 

I am sorry to hear of your dad, but  depending on when this took place. Techniques, science and research have improved greatly. I know its all a big massive worry and your feelings are warranted and valid. 

I am rooting for you amd so are many others here aswell. Keep chatting and let those thoughts flow x

Hi Claire22

I'm so sorry to hear about your mum.

Hi Daffodil glory

I'm so sorry to hear that you are struggling and that you are in so much pain.

Hi all

I hope you've all had some good sleep.

I've been for my routine diabetes blood test this morning, hopefully I've not been too naughty. Because I've got a lovely bruise where the canula went in for my CT on Sunday they had to look for a vein in my other arm, it took a while

H

It's strange how a blood test can sometimes cause a large bruise and at other times there's hardly a trace. For the last two nights my sleep pattern has been bearable but inconvenient. On Monday I went to bed at 1am but could not get to sleep. I listened to music on my MP3 player (Tom Petty), going through all of the tracks on an album twice before finally putting the music to one side and sleeping. Yesterday, I thought it was a good idea to wait until I felt tired, then go to bed. At 4-30am I gave up and went to bed anyway, falling asleep at about 5am.

At least today I feel reasonably cheerful because my car passed its MOT with only an advisory on the rear tyres cracking - which I asked them to replace as I was planning on doing so in the next week or two.  

I hope that the blood they found in your other arm did not betray naughtiness .  Ray x 

I was told i have blood cancer and i have to have chemo in the next few weeks. My stress levels are through roof. I can manage to fall asleep when i go to bed but waken up a couple of hours later.

Its all natural. Lack of sleep. Worry and anxiety are all part of the process. Sounds like you have not been dignosed very long. My info in profile. 

Sleep is a big issue and something each of us no matter of cancer, type, stage, treatment, surgery we have been through. I personally still struggling with sleep at times and when my cancer journey started I was getting about 14 hours over 3 days. Often laying awake, googling, researching and to be honest it didnt help. It made it worse. Especially at night when there was no one around to distract me. 

In the end I went to my GP explained the situation and said I have tried everything to sleep and they really supported me. Sleep is still an issue but I am having more nights of 6 and half hours then the 3 to 4 I was getting. 

Its is all trying to learn to what you find useful to help you stay asleep or at least do different things to occupied the mind away feom the thing worrying us the most. The group here offer some great advice and support. 

Good evening Marylyn and welcome aboard.

I can't add much to what Jamie has written, other than it could be helpful to yourself to join the blood cancer group, as you'll be able to connect to others there on a similar path. A community champion will provide the link when they see your post.

You're not alone having sleeping problems sweetheart, as a fair few of us here also struggle. Personally, I was still awake after 4am this morning, so if you drop by later I'll most likely be awake. Sending you hugs xxx