Awake and up all night

  • 6806 replies
  • 314 subscribers
  • 463483 views

Are you having trouble sleeping?

Sleep problems may be caused by how you’re feeling emotionally, or as part of the side effects for cancer treatment. If you find it hard to have a good sleep, you’re not alone. The Online Community is here to support you 24/7. 

“Getting a cancer diagnosis is extremely stressful, and that brings a whole load of emotions, and lack of sleep certainly does not help. I think many of us have periods of insomnia. I experienced a long period of not sleeping. I could go off to sleep quite quickly, but after an hour I would find myself wide awake again, and would spend the rest of the night getting frustrated because I couldn't sleep."
Community member, ‘Pancreatic cancer’ group

This discussion thread is for members who:

  • Have trouble sleeping and looking for somewhere to talk
  • Would like some company and support each other during the night
  • Share some things you do that helps you get to sleep

Be a part of the supportive Community in this discussion thread.

  • We'll all be thinking of you Kez Hugging Many here who've had surgery will know the range of emotions you'll have right up to the day, but once it's done you're over that hurdle and on the road to recovery.

    When my OH had his operation it was a long day for me, waiting almost 18 hours before I could ring ICU and find out how he was. Thankfully, OH was out of it all that time and didn't know I was going bonkers with worry! 

    If your surgeon gives an indication how long you'll be in hospital post op, you could get some things to occupy yourself whilst there. The in-house food was pretty good in the hospital OH was staying, and he really enjoyed the Christmas dinner they served up. Hopefully you'll like the food too. Have a good day sweetheart, and sending you hugs xxx

  • Hello DaisyKate, and a very warm welcome to our group.

    It's not surprising your sleep's been affected, so recently diagnosed, but you can call in here anytime and you'll always find someone to chat with.

    If you'd like to mention what your diagnosis is, there are groups specific to the kind of cancer you have, and then you'll be able to connect with others who'll be able to give more direct support and advice. A community champion will provide links to these. But do drop in here for anything else you'd like to chat about sweetheart. Sending hugs xxx

  • Welcome Daisykate to our little family of peers. All here to listen and support you the best we can. Sorry to hear of your recent diagnosis, and hope over the next couple of weeks you start to get more answers and ideas of future plans xx

    Community Champion Badge

    Helpline number 0808 808 00 00 

    7 Days a week. 8am to 8pm 

  • Diagnosis was lung cancer and a possible operation but I need to put weighy and be stronger. I have now developed a cough which I think  may mean no operation,  I am not very good on the phone and actuall I stupidly expected Macmillan nurses to still visit . But I'm already feeling more confident and ready to face the future no longer feel so alone . My husband is not coping so well, think he expected a quick answer

  • Hello  

    Welcome to Macmillan's Online Community although I am so sorry to find you joining us.

    Here's a link to the lung caner group:

    Lung cancer forum 

    Once you click on the link I have provided and the page opens up, click on "join" on the black banner at the bottom of the page. Once you have joined the group you can introduce yourself in the "New Here - Say Hello" section.

    The "Awake" thread you are already on is for anyone to chat and obtain help and support.

    If you need any further help or advice in navigating the Community please do let me know.

    Best wishes - Brian.

    Community Champion badge

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

    Strength, Courage, Faith, Hope, Defiance, VICTORY.

    I am a Macmillan volunteer.

  • Just because you think they may not operate.does not mean no treatment i am on chemotherapy and immunotherapy .i am doing ok and am sure you will cope with what ever is next .when you see your consultant things will be clearer. When ever you feel alone there is always someone here to talk to sending you hugs keep in touch x

  • Hi again DaisyKate.

    I'm sorry to hear about your diagnosis my lovely, but you need to get yourself in a better, more informed place, which will also help your husband if he's not coping too well.

    I'm assuming you're under a team at your hospital? If so, make a list of all the things you'd like to know, for example, about your weight. A dietitian will give you information on the best way to gain the pounds, if that's crucial for surgery, and the cough you've got should also be looked at. Please don't worry about not being great on the phone, just dial the number and tell whomever you speak to that you'd like clarification about certain issues. Have you got a treatment plan yet? If so, this should give you details about what to expect in the coming weeks/months.

    If you'd like to join the Lung cancer forum, a champion will hopefully soon provide the link, then you'll have much more scope to post any concerns and get more insightful answers from others who've been where you are now.

    Don't despair sweetheart, things will soon pick up once you know what to expect. Sending hugs xxx

  • Thank you Brian - you're well ahead of the game.

    I was typing a reply to DaisyKate but had to leave it to do something - you'd already done the honours before I got back.

    Thanks again Speedy xxx

  • Thanks Lynne. Hey, how's your sister doing love? Fingers crossed she's doing ok Prayxxx