Awake and up all night

I don't blame you at all - I'm pretty certain everyone would feel sorry for themselves as well. You're doing great though, halfway through the treatment from hell. I've not been there myself, but as my OH's carer saw it all from the closest of quarters and the aftermath. I'm gonna stick my neck out and tell you it will get better - just keep hanging in there sweetie. And make sure you reach out for all the help you can get until the treatment comes to an end. Sending you strength and hugs xxx

I have nights of no sleep or broken sleep. I have personally stop the scrolling now as the info just makes me feel worse and decided I cant do anything about it. No matter how much I read or research it's all individual. I need to trust the process. I just got to dance with the good days. Cry on the bad days. Then smile on the days in between. 

Great advice Jamie. There should be a public health warning against Dr Google xxx

Hi Daffodil gloryb7a15f 

I’m sorry to read you’re having such an issue with pain keeping you awake-I had cervical cancer myself, and went through chemo and pelvic radiotherapy so I can certainly remember how tough it was.

It would be best to speak to speak to whoever has prescribed your meds, but I appreciate that will be difficult over the weekend. I’ve had prescriptions for the drugs you’ve had, but none of us can give advice about whether you can take both at the same time. You could phone the 24/7 chemo number and you can get advice from the hospital, or as the others have said there is the option of phoning 111.

This treatment takes its toll-I had 32 sessions of radiotherapy myself and 4 chemos and found it exhausting, but I didn’t suffer from the type of pain you describe. I’d definitely try to speak to your nurse or consultant on Monday just for some reassurance.

Hang in there with the treatment-you’re nearly done. My side effects went away pretty soon after my treatment ended and everything was so much better.

Sarah xx

I feel you there. I wonder how I went from just living my life to this shocking change where everything is so messed up.

 The treatment is so severe and I don’t even know if it is working. Like you say, just trying to cry on the bad days and run with the good

gill - it sounds like your OH was lucky to have you by their side. X

There should be with Dr Google. And most of it just conflicts or adds the doom and gloom. Since joining here really is giving me much more hope and positive attitude to face whatever comes next. 

That's good to hear Jamie, and I hope Daffodil stays here too. Sarah's great for the medical side of things and her sage advice. Hope you get some sleep soon fella xxx

I went from a little back pain and passinf blood to full kidney out and possible lung lesion which they are not sure what it is yet or it might be nothing. It all just happens so quick that processing what's happening is just not possible right away x

Hi Sarah. Thanks for your reply. I think the reason I am having such pain is because (sorry for tmi) my tumour is very close to my anus and thus the RT is hitting it with full dose. I have not had surgery so this combo is full strength. Combined with the chemo tummy I am having lots of bowel movements and bleeding/pain from the back passage. I’m sorry to everyone for talking about the symptoms but I guess a cancer forum is as safe a place as any to say this stuff right?

i am now able to take another dose of dihydrocodeine which I am about to do and hopefully it will help. I can’t bring myself to take oral morphine because in my head, if I’m not screaming it can’t be bad enough for morphine!

Oh, and I’ll second the advice of no doom scrolling on dr google! It really won’t help because it’s not advice for you as an individual. Far too many stories of doom and gloom to be found there.

Sarah xx