Awake and up all night

Good morning night owls  well monday mornings brought chemo day and steroids which always seem to keep me awake. I thought I'd have a little visit before going down to make a drink.

I hope 2026 and its snowy start finds everyone in a better place than 2025 xxxx 

I apologise now , I feel this is going to be a long one.....

Yesterday, slowly got out of bed, like a sloth on some illegal stimulant. Looked out of the window and thought I'd been transported to lapland. My little 500 looked like a giant Olaf. I put the radio on "Manx radio" i know this will wake hubby, memories of going to the TT. Usual routine, then off to the hospital, armed with goodies, Richard Osman book, crosswords, snacks (beloved snacks ). Phone charger (why when im only there 6 hours max i dont know, maybe the brownie in me from my childhood days, be prepared)  - just to digress - these steroids are something else  - anyway back to Olaf, and for someone who has to be at an appointment at least half an hour early, this wasn't looking good, copious amounts of ice and snow and lots of elbow grease and a full can of deicer we set off. First day back for schools, ice and the roads where chokka. Waze, my friend, kept directing me away from red standstills. Finally we arrived 10 minutes late,  I felt dread. Im still coming to terms with the hospital staff not being phased when people are  late. One nurse said it all just seems to work. A radiotherapy then chemotherapy, a lovely volunteer bringing us copious amounts of drinks and lunch, a nurse bringing me a goody bag of "radiotherapy" moisturiser and the most exciting thing ever (not) a dilator. I actually asked if it came in different sizes, spoken like a true mother of 3 ! Yes she said, its a bit like a Russian Doll , they fit inside each other, my crafting mind ran away with itself, visions of the said Russian Dolls lined up on the mantelpiece above the roaring log fire... decorated with fine acrylic designs. Before I realised I'd actually verbalised my exciting thoughts. We both roared with laugher, well as much as you can roar on a ward full of people having chemo. Another lovely nurse to add to my list. Well the concoction of antisickness tablets must be working because I can't get McDonald's fries and a chicken korma off my mind. This is probably the best day ive ticked off up to now.

I might give the cup of tea a miss and try and sleep. 

Thanks for being there . Love and hugs to you all .

Lesley   xxx

Hi Lesley,

You had quite a day by the sound of things. Glad your sense of humour is upbeat and helping you face all the treatments. Russian dolls, lol!

You sound focussed and that’s important. Also, having an appetite is great (did you get that korma you fancied?).

I hope you have a good day resting today.

Best.

Didn't get the korma, McDonald's fries haha so today will hopefully be korma day. Ive taken anti sickness tablets , so all looks good xxx

Morning Lesley  

What a brilliant post my love - bravo! Well you've summed up your trials and tribulations in the most amusing way and it was a refreshing read, to say the least, and should give others here going through the same a real boost.

I'm so pleased your team for chemo and RT are fantastic and accommodating, as it just makes everything so much better. Ours was the same - I'd be tripping over myself to apologise if we were delayed but they weren't bothered at all and immediately put our minds at ease. They really are the most brilliant people you'll ever come across, and thoroughly deserve the treats most patients give at the end of treatment.

It's great the anti sickness meds are working and hoping your future treatment goes as smoothly as possible, brave lady.

Here's one night owl  cheered up with your smashing post! All the very best, and warm hugs coming your way sweetheart xxx

Thanks Gill, I was full of energy last night, this morning I feel like I'd been at a rave the night before haha. Just time for another anti sickness tablets and steroid and ill be ready for action and round 2 at lunchtime  xxx

 Oh the joys 

Lots of hugs to you too xxxx

You're a real fighter - move over Cassius Clay! Who? xxx

Hahaha floating like a butterfly stinging like a bee  hahaha

Hugs Lesley

Hello. 
I love your post. Keep the humour and positivity going. 
The very best wishes for the rest of your treatment. You have got this. Sending hugs. 
xx

Thanks Kez x 

It comes in waves, some ebbs and some flows. My personal experiences have been , focusing on positivity lifts my mood. Im not being flippant when I say that, I know its not always easy, but its my focus. We all have our own tools to get through this

Sending hugs back to you

Hi Lesley

I loved your post, I've never thought about re-purposing the dilators

I  have to agree about how wonderful the nurses are.

Hugs for your ongoing treatment. 

H