Are you having trouble sleeping?
Sleep problems may be caused by how you’re feeling emotionally, or as part of the side effects for cancer treatment. If you find it hard to have a good sleep, you’re not alone. The Online Community is here to support you 24/7.
“Getting a cancer diagnosis is extremely stressful, and that brings a whole load of emotions, and lack of sleep certainly does not help. I think many of us have periods of insomnia. I experienced a long period of not sleeping. I could go off to sleep quite quickly, but after an hour I would find myself wide awake again, and would spend the rest of the night getting frustrated because I couldn't sleep."
Community member, ‘Pancreatic cancer’ group
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Hi there Tamindu, and another warm welcome to you, as you're the second newbie tonight. Well, this morning now.
So sorry to hear about your Gramps but he must be so glad to have you as his carer. As a fellow carer I know just how hard and tiring it can be, so I empathise with the lack of sleep.
Now you're here, feel free to chat about anything you like or join in with any conversations. The main topic earlier was Christmas - food, films, advent calendars etc. Have you got any plans for the festive season? Hugs to you xxx
I just don’t know what to do anymore, he’s had 2 strokes since October ( most recent one being yesterday) I’m doing my best to look after him but it’s just not good enough. He has a friend who disrespects me at any given opportunity, try’s to tell me exactly how I should be looking after him. My uncle is just being awful and I don’t know what to do.
i’m sorry for the rant i’m just so angry with the world right now xxx
You rant away my love. You've every right when all others seem to do is disrupt what you must be struggling with.
Do you have any help with caring for Gramps, district nurses or his hospital team? You really can't be expected to do everything by yourself, and if all the others involved just moan, tell them either to offer constructive help or butt out.
I understand your anger - it's natural when you're in such a predicament. If you like, tell me what you'd like to happen that could help you both xxx
My mam is brilliant, she helps me. His friend takes him out once a week and my uncle takes him out once or twice but doesn’t spend a lot of time with him. Adult social services have been out and are pleased with the level of care we are giving him. What makes it worse is that he doesn’t have a clue what’s wrong with him as the healthcare professionals think he has vascular dementia. I normally deal with things quite well but today it’s hit me like a tonne of bricks xxx
Aw love. Whatever you do, don't beat yourself up and just take some deep breaths. I'm so glad your mam's there too, as between you, you'll be better able to cope. Maybe that's why your uncle and his friend are being off with you, as they're not coping with what's happened to Gramps and are finding it hard to accept.
You need a little time to yourself. Although it's great that social services are happy with your level of care, you're not trained to deal with dementia and they should provide a service that is. Please make that clear the next time they visit, as you can't be responsible for your poor Gramps state of mind. Speak with your mam when you can, and have an honest discussion about the best way to go to make sure he gets every care plan possible. I'm hoping things will be resolved soon, to help you all xxx
You're more than welcome, and don't apologise as it's obvious you care very much for your Gramps, in every respect.
Now you've got things off your chest a little, why not try and relax? You might be able to nod off and feel much better for getting some sleep. Fingers crossed for a result xxx
The very best thing to do is what you have just done. Rant here!
Don't bottle it up, blow it all. Get it out. We are here and our shoulders are strong and our ears big enough to listen.
Do what you can practically but stop short of annoying those that shout the loudest around you, wait until they wear themselves out and be patient. You’ll get your chance.
Talk to someone, talk to us.
I think I’ve just gotten so used to bottle things up I’m finding it hard to really open up. I’m trying to stay strong and put on a poker face but I feel it slowly slipping
Pah, still wide awake- pretty sure following my treatments my (undiagnosed) adhd inattentive combined has unleashed itself
Fatigue insomnia burnouts - just wondering if being pushed into early menopause with no hrt has triggered this... long shot, but I am curious if other neurodiverse folk have reacted like this?!
With the hormone changes and dopamine drops
Night owl since treatments started, just can't switch off
Kind regards, hope lots of you do sleep
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